Latest posts tagged with #Muscular_Dystrophy on Bluesky
Here I am not complaining more than describing the feelings that chronically ill and/or disabled folks, house-bound or bedridden generally feel ,and trying to manifest by words the life they are struggling so hard to change
#chronicillness
#Disability
#Muscular_Dystrophy
That prison they are confined to becomes like a grave in which nothing inside belongs to the real life .
#chronicillness
#Disability
#Muscular_Dystrophy
To live as a chronically ill and/or disabled person,house-bound or bedridden is like living as the shackled prisoner who misses everythings they used to see and do out and are helplessly longing for their previous free life again.
#chronicillness
#Disability
#Muscular_Dystrophy
Even in gloomy dark time , when uncertainty covers our life and our minds gets blind,we still need to grope for seeds of hope .
#Hassan
#chronicillness
#Disability
#Muscular_Dystrophy
Reality oftenly interrupts our pleasant dreams and defeats us .
#Hassan
#chronicillness
#Disability
#Muscular_Dystrophy
It may take me so long to achieve the goal of improving my life qualities since war and its consequences still haven't come to an end yet but I won't give up on struggling for my life;I don't have any other option .
#chronicillness
#Disability
#Muscular_Dystrophy
So I am in dire need to change my life to be better, but the point is that I need to survive the difficult time first while I am on my way to build my own life again from the scratch.
#chronicillness
#Disability
#Muscular_Dystrophy
Due to Muscular Dystrophy, I lost my ability to live a normal life and what made the situation more worse is that I am living in a war-torn country like Yemen
#chronicillness
#Disability
#Muscular_Dystrophy
For the time being,all I want is to be able to keep going in this difficult time .
It's just a wish and I hope I won't be let down.
#Muscular_Dystrophy
That's the story of Muscular Dystrophy in brief.
#chronicillness
#Disability
#Muscular_Dystrophy
For chronically ill and /or disabled people who are housebound or bedridden, life is only being alive.
#chronicillness
#Disability
#Muscular_Dystrophy
I don't know who cares , but I have no options other than fighting for my life.
I won't give up even though things are getting worse and worse here .
#chronicillness
#Disability
#Muscular_Dystrophy
I feel deeply stuck and hope I can save what's left of my life this year.
I am fed up of being chronically ill and living as a prisoner here.
I eagerly want to turn my life into a better one and hope I can .
I don't want to fail.
#chronicillness
#Disability
#Muscular_Dystrophy
I spend my life sitting idly every day without being able to do anything .
Can you imagine how boring that life is ?
I don't want to lose hope though I often feel lost .
#chronicillness
#Disability
#Muscular_Dystrophy
Noting for those who might overlook the fact when seeing the amount raised in total: my fundraiser has been running since 2018. The total amount raised is not fund I currently have. I need support nonstop in my long continuous journey .
#MutualAid
#chronicillness
#Disability
#Muscular_Dystrophy
So I have been living stuck in house for so many long years now, completely dependent and unable to work or do anything thing for living ,and that the most annoying endless nightmare in my life.
#chronicillness
#Disability
#Muscular_Dystrophy
The worst part of my chronic illness (progressive Muscular Dystrophy) is that it has turned me into an immovable house-bound person.
#chronicillness
#Disability
#Muscular_Dystrophy
I need $ 450 roughly per a month ,i.e.$12 - $15 a day to cover my daily needs are needed .
Kindly contribute if you can or share widely please.
Thank you in advance
Hassan.
#MutualAid
#chronicillness
#Disability
#Muscular_Dystrophy
#MuscularDystrophy
www.gofundme.com/f/help4hassan
I live in a war-affected poor area and have been depending on a Gofundme page to survive for almost eight years,but unfortunately, I haven't been able to reach my monthly goal recently.
#MutualAid
#chronicillness
#Disability
#Muscular_Dystrophy
I will keep raising my voice and sharing my experience living with Muscular Dystrophy on hope I can survive such horrible illnesses though no guarantee for success.
Just need to stay hopeful to be able to keep going.
#chronicillness
#Disability
#Muscular_Dystrophy
To conclude , my wish for the upcoming new year is that my life turns to be better, and till that time,I hope all my friends and people who hear my words can put up with me ;l don't want to feel alone.
#chronicillness
#Disability
#Muscular_Dystrophy
I am not living in an ideal country or environment that accommodates people with rare diseases or disabilities properly as it must be .
So I need to keep struggling to find my own way to live in dignity.
#chronicillness
#Disability
#Muscular_Dystrophy
I feel I am boring and people may not continue to put up with me, but it's life ;I can't avoid being in such situation or get well again.
I need always to talk and break my isolation as chronically ill and house-bound person .
#chronicillness
#Disability
#Muscular_Dystrophy
