Latest posts tagged with #PatientPartners on Bluesky
Take a moment and read our report back to community as the Atlantic Cancer Consortium Patient Advisory Committee 💓
It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer
www.saltwire.com/newfoundland...
#PatientPartners
fatigue, weakness, swallowing difficulties, and the invisible labour of navigating complex care pathways.
🎙️ Link: youtu.be/bkk_okQ3mtk
#AutoimmuneDisease #RareDiseaseResearch #PatientPartners #TranslationalScience
🧵 End
New post just dropped reflecting on why pre-award PPI is expected everywhere yet still so hard to do meaningfully!
#PPI #LivedExperience #ResearchInvolvement #PatientPartners #PreAwardPPI #CoProduction #HealthResearch #PRPNetTT
The 3 R’s: Recognition, remuneration and reimbursement of #PatientPartners in research.
Join Dr. Stuart Nicholas of the Ottawa Hospital Research Institute for an insightful webinar on how to include people with lived experience in research.
📆 Nov 26
🕞 9am PST
Register: https://bit.ly/4r25UBz
and you can listen to our podcast episodes (all 28 of them) here:
SPOTIFY: open.spotify.com/show/0dty5nE...
14/ #NewfoundlandAndLabrador #Advocacy #PatientPartners #PublicEngagement #Cancer
You can read the guest blogs on our website: please check here:
strength-in-community.ca/public-inter...
13/ #NewfoundlandAndLabrador #Advocacy #PatientPartners #PublicEngagement #Cancer
Please join us by reading the blogs, listening to our podcast episodes, and advocating for a better future in NL and beyond
You can read our publication about the podcast and blog series on cancer here: www.mdpi.com/1718-7729/32...
12/ #NewfoundlandAndLabrador #Advocacy #PatientPartners
- While I thought (and still think) that it is the obligation of the Government of of Newfoundland and Labrador and the NL Health Services to inform and empower our population, we wanted to do our part as dedicated advocates
11/ #NewfoundlandAndLabrador #Advocacy #PatientPartners
- This project has been fueled by care and compassion that we feel towards the people affected by cancer ❤️
- Cancer affects 2 in 5 people in our province. Its effects extend to family, friends, workplaces, and communities
10/ #NewfoundlandAndLabrador #Advocacy #PatientPartners
- We are incredibly honored to have published our experience, perspectives, and lessons learnt in this publication
It also gave us a unique opportunity to advocate for better public and patient contributor compensations globally
9/ #NewfoundlandAndLabrador #Advocate #PatientPartners
Looking forward to the 10th Brit-PACT annual hybrid conference on Friday! Interested researchers, HCPS and patients can register via the email at info@britpact.org 🖐️
#psoriaticdisease #rheumatology #patientpartners
That sounds familiar! #PatientPartners
🌟 Our Epidemiology group held a session on getting effective feedback in #PPIE. We explored embedding patient & public voices from the start, shared experiences across projects, and reflected on how to strengthen PPIE so research is relevant & impactful. 🙌 #Research #PatientPartners
For Patients, By Patients
Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!
If you want to join, it's free!
Sign-up here ➡️ pxphub.org/event/
And if you missed day 1, head to the #Rewatch parties 🥳
My next manuscript is about how university, funder or federal government policies or practices prevent (or make it harder) to compensate public partners
Stay tuned 😠
#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs
The Australian Consumer Partnerships in Research Aug 12, 2025 finalists showcase-Register to tune in wherever you are in the medical world.
ccrew.accesscr.com.au/cpir-2025/li...
#CPIR2025Awards #patientengagement #patientpartners #consumerpartnership #clinicalresearch
If we can get together, there is nothing we cannot achieve.
One day, we will eradicate this disease called cancer
#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador
Interested in reading scientific papers but not sure where to start or what the parts of a paper are? We've co-created a resource with #PatientPartners for you! See our blog pxphub.org/how-to-read-... and the resource laid out like a scientific paper pxphub.org/wp-content/u... /1 #PatientEngagement
The conversation about diabetes must extend beyond pharmaceutical breakthroughs and into questions of affordability, access, and social support, says Dr. Rachel Reeve:
www.hilltimes.com/story/2025/0...
@diabetescanada.bsky.social
#cdnpoli #diabetes #patientpartners #patientvoices #patientadvisors
Too often, patients are brought in after the fact. My latest explores what authentic engagement really looks like. #PatientPartners
My colleague Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence the health-related research
take a look ❤️
#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners
creators.spotify.com/pod/show/sev...
🎤 Take a look at the exciting keynote panel opening #eHealth2025! Pleased that the patient perspective is included with the participation of PAN member, @amaybee.bsky.social
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners
Canada’s Drug Agency made AI the focus of its 2025 Watch List 🤖
PAN members @sandrashares.bsky.social @ctzenimprover.bsky.social @donnapp.bsky.social helped shape it—alongside other patient/caregiver partners.
📖 More via Pat Rich: bit.ly/3YxG1N7
#AI #PatientPartners #PatientsUseAI
I had the pleasure of speaking with Roche employees about patient engagement today.
I was thrilled at their inquisitive questions that told me they were truly interested in the role of #patientpartners.
#engageateverystage because we truly are #bettertogether.
👋 Welcome to PAN on BlueSky!
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience
This is a must read for #patientpartners #researchers
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”
#PatientPartners involved with Health Services Research Apply Today @academyhealth.bsky.social lth #ARM25 academyhealth.org/page/2025-ar...
#TakeSteps for #CrohnsAndColitis with @childrensnational.bsky.social Team on 5/17/25 in #WashingtonDC‼️
Join Our Team Here:
takesteps.crohnscolitisfoundation.org/index.cfm?fu...
#IBD #CrohnsDisease #UlcerativeColitis #Crohns #Colitis #Advocacy #Research #GrowthStudy #PatientPartners #Kids
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#PatientPartners are a vital part of the MUHC community. We’re always looking for more volunteers to join our team. The #PatientEngagement Office has launched a new web page explaining what patient partners do and added an online form to simplify the application process!
muhc.ca/patient-part...
📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1
