Latest posts tagged with #ebawareness on Bluesky
🎂 We are wishing our Royal Patron, HRH The Duchess of Edinburgh, a very happy birthday! 💜
We are incredibly grateful for Her Royal Highness’s unwavering support for the EB community and DEBRA’s mission to stop the pain of EB. 💙
#DEBRAUK #EBAwareness
📍 Last night, we were proud to host a special reception at Scottish Parliament to share the latest global EB research priorities and highlight the urgent need for improved access to specialist EB healthcare in Scotland.
📖 Read the full story: https://bit.ly/47TdZQd
#EBawareness #DEBRAUK
Update for tonight, streaming and catching up with art works for my series Cho No Senshi. It will just be on TikTok Live tonight. #artist #bluskyart #updates #fyp #art #tiktok #livestream #artstreamer #ebawareness
www.tiktok.com/live/event/7...
Schedule is up for this week. Trying to get my presence known and out there. #artist #networking #bluskyart #livestream #TikTok #nimotv #art #followme #gaming #ts4 #pridemonth2025 #community #goals #ebawareness #mentalhealthawareness #love #families #care
Streaming tonight at 8:30 PM EST. Show these families love and help spread awareness for EB! Follow me on my art journey, help me reach beyond borders. 💜Kiki
#artist #artstreamer #art #ebawareness #butterflychildren #butterflyskin #Tiktoklive #fypシ #family #friends
www.tiktok.com/live/event/7...
Finally some good news! #debraUK #debra #butterflychildren #ebawareness #health #medical #children #fragileskin #butterflyskin
www.linkedin.com/posts/debra-...
Now, why have I been saying “?Mystery?” this past week? Well today I will reveal it live. #bluskyartist #Art #bluskyart #nimotv #globalart #ebawareness #illustration #digitalart #magicalgirl #anime #otaku #butterflychildren #debra #cureEB #family #clipstudiopaint
www.tiktok.com/live/event/7...
Designed by Sophia who lives with EB, these beautiful limited edition tote bags are available now at Mace stores. Sophia is teaming up with Mace and Johnny Sexton to raise awareness of EB.
Get yours now! All proceeds go to supporting people impacted by EB. 🦋 #ButterflySkin #EBAwareness
Spreading awareness for EB through art!
www.tiktok.com/live/event/7...
#Art #Artist #Digitalart #illustration#tiktoklive #ebawareness #epidermolysisbullosa #artstream #livestream #butterfly #butterflychildren #NimoTV #youtubechannel #wip #Liveevent
#bluskyart #bluskyartist #tumblrartist #niche
I’m live on TS4 today. I felt like the Inzoi room to support my friends didn’t reach the vision I wanted. It disappointed me but that art will still come on later.
#ts4 #ts4build #family #cute #artist #bluskyartist #gaming #butterflychildren #ebawareness #butterflies
www.tiktok.com/t/ZTjaR6CWx/
Butterfly Room Part
Tonight is the final stretch! I will be uploading my polished art on InZoi and using patterns as well as paintings. This room is dedicated to the butterfly 🦋 children, their families, as well as those living with EB (Epidermolysis Bullosa). #art #inzoibuild #inzoi #ebawareness
On Tik Tok Live right now, Butterfly 🦋 Room part 2! In dedication to our beautiful butterfly babies and peeps. #family #inzoi #artist #art #inzoibuild #clipstudiopaint #epidermolysisbullosa #ebawareness #butterflychildren #tiktoklive #livestream #arttok
www.tiktok.com/t/ZTjUpSdKv/
www.tiktok.com/@kg.artist09...
#artist #bluskyart #butterflychildren #raisingawareness #ebawareness #Debra #artstream #tiktoklive #digitalart #family
Art for EB Awareness and Izoi design. Today I'll be streaming art and designing a butterfly room for Inzoi, dedicating the room to the little ones fighting EB. #EBawareness #butterflychildren #art #tiktoklive #tiktok #livestream
www.tiktok.com/live/event/7...
