Latest posts tagged with #endFTD on Bluesky
1/6 Can a single Tau mutation break the neuron’s recycling system? 🧠🔬
Our new study in Nature Communications links p.R406W Tau to multi-step autophagy failure, and points to a therapeutic path.
#Tauopathies #endFTD #DrugDiscovery #Neuroscience #Lysosomes www.nature.com/articles/s41...
Rare Disease Week starts today. FTD is rare, but our community is strong. Being counted in the FTD Disorders Registry helps drive research, inform better studies, and move us closer to treatments.
Read more:
ftdregistry.org/press/being-...
#endFTD #RareDiseaseWeek
Professor Eneida Mioshi and her team at @uniofeastanglia.bsky.social (UK) are developing a free, online intervention designed to support family carers of people living with #frontotemporaldementia (FTD). To participate or learn more about the program, visit ftdtoolkit.org
#endFTD
Some behaviors related to FTD can lead to unexpected interactions with the criminal justice system. This month’s Quick Question asks whether you or your loved one have experienced this. Share your voice: ftdregistry.org/quick-questi...
#endFTD
You joined the FTD Disorders Registry. Now what?
Update your info. Enroll in the Registry Research Study. Complete surveys.
FTD is rare. Every participant matters. Numbers have power.
Learn more: ftdregistry.org/press/you-jo...
#endFTD #FTDresearch
The @alzheimerssoc.bsky.social initiative to raise awareness among the public of how those affected by #dementia can be supported in everyday settings. I've joined the Friends #endFTD being under recognised #svPPA #carer
The @pennftdc.bsky.social and @theaftd.bsky.social are offering the FTD Clinical Research Learning Institute, a free virtual program for people impacted by #FTD.
Become a certified FTD Research Ambassador and help improve FTD research.
Apply: www.pennftdcenter.org/ftdcrliresea...
#endFTD
Congratulations to Jane Dean on being named the 2026 Snowy Valleys Citizen Achievement Award! Jane, Stephen, and their family have made an extraordinary contribution to raising awareness and funds for #FTD research within the Tumut community. #endFTD
www.snowyvalleys.nsw.gov.au/News-Media/S...
Photo of AFTD Ambassador Scott Oxarart with his father, smiling and posing together. Quoted text describes Scott's effort to raise awareness about FTD in Reno, Nevada, featuring the AFTD's With Love campaign logo.
With Love is more than a fundraiser — it’s a way to honor someone you love, raise awareness of FTD, and support families facing this disease.
This February, join Scott and others as they turn love into action. Create a page, share your story, and help #endFTD: https://bit.ly/4pPEpJs
New paper by @samuelwarren.bsky.social and colleagues,
Modeling contributions of cognition and apathy to functional impairment in younger-onset dementia
doi.org/10.1002/dad2...
@alzdemjournals.bsky.social
@muireannirish.bsky.social
@brainandmindcentre.bsky.social
@sydney.edu.au
#endFTD
Progress toward an FTD cure depends on communities and researchers working together.
Learn how the FTD Disorders Registry and the Cure GRN-FTD community are helping advance research and future clinical trials: ftdregistry.org/press/streng...
#endFTD #CureGRN #FTDresearch
2025 was a year of momentum for the FTD Disorders Registry, with a 97% increase in new accounts. Learn more about the year’s growth and impact: ftdregistry.org/press/a-year...
#endFTD #FTDresearch
AFTD Welcome 2026 banner featuring the year filled with various photos of AFTD volunteers
2026 begins with community at the center. ❤️
These faces represent strength, advocacy, and the many ways people show up for the FTD community. As the new year unfolds, AFTD remains committed to paving the path forward to #endFTD.
Save the Date Image for The AFTD-Team Race Season 2026_1
Save the Date Image for The AFTD-Team Race Season 2026_2
Save the Date Image for The AFTD-Team Race Season 2026_3
🏃♀️ Save the Date: The AFTD-Team Race Season 2026 🏃♂️
Join The AFTD-Team as we take on races across the country to raise awareness and support for people and families affected by frontotemporal degeneration. Every step, every race, every city, we run to #endFTD.
Sign up today: https://bit.ly/48W6IPW
FTD certainly made Christmas worse than I expected. And I had a low bar. #endFTD #FTD #dementia #ftd
#endFTD and other dementia needs research and the scientists. BBC Today #Guesteditor on Boxing Day featured @tspiresjones.bsky.social and @clairedurrant1.bsky.social, funded in Edinburgh by #raceagainstdementia great story. #bbcjamesgalagher
#endFTD and other #dementia research featured on #BBC #Guesteditor on Boxing Day (7:35 GMT). @clairedurrant1.bsky.social
Our 2025 group photo. Big smiles, big plans for the year ahead.
#frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD
@brainandmindcentre.bsky.social
@sydney.edu.au
Attending #CTAD2025 this week? Stop by our poster P407 to learn more about the FTD Disorders Registry. #endFTD
We’re deeply grateful to #DementiaSupportAustralia and #AFTDA for creating Carer Conversations, a lifeline for people across Australia who are supporting someone living with #frontotemporaldementia.
www.dementia.com.au/resource-hub...
#endFTD
On #GivingTuesday, we’re grateful to @theaftd.bsky.social & The Bluefield Project, whose support makes the Registry possible.
Please consider supporting these organizations driving progress to #endFTD.
AFTD: www.theaftd.org/get-involved...
Bluefield Project: www.bluefieldproject.org/donate/
#endFTD being under-researched as distinct from Alzheimer's in where in the brain it is detected, the proteins to test for, and how it presents and progresses.
#endFTD being neglected as researchers have less funds than Alzheimer's cases.
#endFTD being under reported and not explained as dementia that is identifiable in its symptoms and is not Alzheimer's. #RaceAgainstDementia please join BlueSky
One drop can tell a story. Discover how biosamples are powering FTD research and how you can help: ftdregistry.org/press/what-w...
#endFTD
Another successful FRONTIER Charity Golf Day in Tumut! We’re deeply grateful to the Tumut community and the Dean family for their incredible support. Your support makes it possible for us to advance our understanding and treatment of #FTD.
#endFTD #PPA
@brainandmindcentre.bsky.social
New FTD studies are now recruiting.
See this season’s Fall Research Roundup to learn how you can help move FTD science forward: ftdregistry.org/press/ftd-re...
#endFTD #Research #NumbersHavePower
Join ISFTD's Webinar on AI in FTD: From Neuropathology to MRI to Clinic
Wednesday, 29th October, 2025 at 11:00 AM EST.
www.isftd.org/events/webin...
#endFTD
#ISFTD
What are Registry participants most interested in?
Each number represents someone looking for answers and contributing to discovery.
Learn more: ftdregistry.org/press/what-t...
#endFTD
Son holding his Mom's hand as she is bravely fighting a terminal illness.
I don’t exactly know why I’m posting this, but my mom is giving her all in the last round of her fight with #FTD. She’s beaten all odds, every prognosis, every step of the way – and I couldn’t be prouder or more grateful for everything. I love you Mom, you’re the best. #EndFTD @theaftd.bsky.social
