Latest posts tagged with #DecodeMe on Bluesky
Cort explores the £20m #SequenceME & Long COVID study's plan to study the whole genome of 18,000 ME/CFS & long-COVID patients. He explains what Dr Chris Ponting aims to do, why & how it adds to other research like #DecodeME. They have employed a fundraiser to raise first £6m.
tinyurl.com/mryx2w4j
Listening to this and it's brilliant
www.bbc.co.uk/sounds/play/...
(And also marvelling how Holgate is a totally different man from the first years of the collaborative and is really very good.)
#MEcfs #LongCovid #DecodeME
On the radio this morning (24/2/26), 28 minutes of discussion about #me/cfs :"Is the tide turning on ME research?" | BBC Radio 4, 9.30am
www.bbc.co.uk/programmes/m...
@meassociation.org.uk #mecfs #MyalgicEncephalomyelitis #medicalresearch
with Chris Ponting (latest #DecodeME results) and others,
Gobsmacked. Zombie behavioural model for #MEcfs continues to be promoted one way or another.
If NICE 2021 had claimed there were evidence for it, if #DecodeME had been null finding, every 'told you so' on the internet would have been telling us it's over, suck it up. But they're just simply ignored.
Dr Jarred Younger discusses a study using the #DecodeME data to look at genetic disease signatures in ME/CFS. He concludes that altered genes alone don't cause ME, there are at least 4 subgroups & there will never be 1 single cure for ME.[16 mins] +Transcript
tinyurl.com/552ws59e
Solve ME asks Prof Chris Ponting from the #DecodeME project "What has changed in ME/CFS research over the last year?" and if he is hopeful about ME research. [8 mins] View on YouTube for Transcript.
tinyurl.com/4d296wv8
🔎 From #DecodeME to LOCOME, it's been a landmark year for ME research.
Hear why this is a pivotal moment for #MECFS research - and how Action for ME is accelerating understanding for everyone affected.
🧬 Donate today and your gift will be DOUBLED: bit.ly/2025-big-give
#ChristmasChallenge
Precision Life Press Release: Groundbreaking myalgic encephalomyelitis study identifies over 250 core genes, shared biology with long COVID, and dozens of drug repurposing opportunities
Read more: precisionlife.com/news-and-events/me-genet...
#MyalgicEncephalomyelitis #DecodeME
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
Myhill did not vet for PEM though. This was a huge error of judgement, given CFS a la UK is psychiatric.
She also promoted an untested hypothesis in advocating for what is, frankly, a racist diet.
Similar issue for UK bio bank as controls for #DecodeME.
Most #pwME in the world are NOT Anglo Saxon.
Better article : epigenetic markers of #Myalgic E
#CFSMe #DecodeMe #Spoonies #DisabilitySky #NEisvoid
"experts not involved ... 'test would need to be fully validated in better designed and independent studies before it could be considered for use in clinical practice.' "
Exactly what I said!
In the #DecodeME study the genes associated with ME/CFS are found to be involved in neuronal development & communication in the brain. The genes highlighted are not uniquely linked to ME/CFS. But the DNA signal around them is often different.
tinyurl.com/heans3zb
Well done Matthew - that’s great! I took part with 19/20000 people in the #decodeme study for ME and it’s hopefully helping find causes etc
A series of blogs aims to look in detail at the first analysis of the #DecodeME study results. It begins by looking at SNPs and heritability.
tinyurl.com/4bznkvy3
Peter uses AI to make a podcast explaining the #DecodeME study results in more simple terms. "Hearing “the presenters” discuss my lived experience without judgement was unexpectedly powerful." [12 mins]
tinyurl.com/4kwxvvx4
IMAGE DESCRIPTION: This AI generated image shows a girl sat on her bed in a dark room, with the graphic of a glowing DNA strand behind her. Heading - Big science, explained simply: the DecodeME paper in 12 minutes, through the voices of AI
Big science, explained simply: the DecodeME paper in 12 minutes, through the voices of AI
This 12-minute podcast was created by a post-viral fatigue sufferer and AI expert, Peter Brookes-Smith dt-squad, to help explain the recent DecodeME paper.
https://tinyurl.com/3jwn39am
#MECFS #DecodeME
The ME Association are pleased to announce that we have awarded Decode ME the Howes-Goudsmit Award 2025 for their extensive work and commitment to their genome-wide association study.
Find out more: https://meassociation.org.uk/ir3e
#MECFS #pwME #SevereME #MyalgicE #DecodeME #HowesGoudsmitAward
DHSC announces plans to create new genomics population health service
Dr Charles Shepherd, MEA Hon Medical Adviser, comments on the blog: https://meassociation.org.uk/b7hq
#MECFS #pwME #MyalgicE #DHSC #NHS #DecodeME
The #DecodeME website has a new home at the university of Edinburgh with all the information that patients and researchers will need about the project.
tinyurl.com/y3yuvxzv
From ME Research UK @meresearchuk.bsky.social :
ME Research UK-funded researcher Dr Jarred Younger has recorded a 15 minute explanation of deCodeME's recently published pre-print results. This covers background, method, results, and importance - tinyurl.com/5n6buzpj #MECFS #decodeME
So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME
