Latest posts tagged with #HelpToHope on Bluesky
We understand that research is a significant priority and source of hope for the leukodystrophy community 🔬👩🔬
We actively promote and support research in a number of ways: alextlc.org/research-and...
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
Want to be a part of something special this #Easter weekend? 🐣🐰
Every egg added to our Easter Basket goes towards our Community Weekend Appeal.
Please donate if you can, and help them create memories that matter:
https://visufund.com/alex-tlc-easter-basket
#AlexTLC #HelpToCope #HelpToHope
Please join us in saying a big thank you to Steve Caines and his family and friends for raising a fantastic £260 at a party hosted by Steve. We really appreciate their continued support 💙
#AlexTLC #HelpToCope #HelpToHope #ThankYou #Fundraising
Please join us in saying a huge thank you to Gregor, who raised an incredible £1,810 for Alex TLC in memory Cameron Harrison, by completing the 20 mile Kingston Break-fest Run. 💙🏃
Thank you, Gregor. What an amazing achievement!
#AlexTLC #HelpToCope #HelpToHope #BreakfestRun
Our March News Round-Up is out today 📩
This month we will be sharing about events we've been attending, your chance to have your say on supporting us and Ask our Community 💙
To join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
Please join us in saying a massive thank you to All Things Darts 🎯 - who run a charity page, where all money raised is donated to good causes.
We are delighted to have been chosen this month and so grateful to have received the amazing sum of £2902.67 💙
#AlexTLC #HelpToCope #HelpToHope
It's #WorldPoetryDay
Aisling Finn has written two poetry books about her journey as a mother of a child with leukodystrophy.
'After' is taken from Motherhood, Plot Twist.
#AlexTLC #HelpToCope #HelpToHope #NationalPoetryDay
It's #BrainAwarenessWeek 🧠
We have created a simple video to explain what leukodystrophies are and the variety of symptoms they cause.
Please share to spread vital awareness 💙
#AlexTLC #HelpToCope #HelpToHope
We need to fill just 20 entries to reach a £200 prize pot for April! Can you help us?
It's just £1 per month if you purchase an annual entry for £12, or subscribe from just £2 a month for 2 entries.
https://alextlc.org/donate/5050-cash-draw/
#AlexTLC #HelpToCope #HelpToHope #CashPrize #Win
Sending love to our community this Mother's Day 💙
Our Counsellor, Mel, shared some advice earlier in the week for those who are struggling. You can read it here: https://alextlc.org/news/mothers-day-message/
#AlexTLC #HelpToCope #HelpToHope #MothersDay
There’s just 7 months until our next Community Weekend 💙
Your support is vital to ensure we can continue to host these vital events; please donate if you can:
https://www.justgiving.com/campaign/alextlc-cw
#AlexTLC #HelpToCope #HelpToHope #CommunityWeekend #Donate
As Mother's Day approaches, it can lead to mixed and complicated feelings for many. Our Counsellor, Mel has some comforting advice for those who need it:
https://alextlc.org/news/mothers-day-message/
#AlexTLC #HelpToCope #HelpToHope #MothersDay
Our lucky 50/50 Cash Draw winner for March has won £188.50, with number 302!
Sign up now to be in with a chance of winning in the April draw 💰 🐣
https://alextlc.org/donate/5050-cash-draw/
#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win
Please join us in wishing Gregor good luck this morning, as he takes on the Kingston Break-fest Run, in memory of Cameron Harrison 💙
https://www.justgiving.com/page/gregor-smith-1
Thank you, Gregor!
#AlexTLC #HelpToCope #HelpToHope #KinstoneBreakFest #Running #Fundraising
February News Round-Up is out today 📩
This month we will be sharing about Rare Disease Day, our counselling service, lighting up our stained glass window and newborn screening updates 💙
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
February is #PayrollGivingMonth!
With Payroll Giving, a £10 donation will only cost you £8 if you're a standard rate taxpayer and only £6 if you're in the 40% band.
https://alextlc.org/news/payroll-giving-month/
#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy
We currently have 42 wonderful people who donate monthly. Could you help us hit 100 regular donors? Even a small amount each month really makes a big difference to our work.
Sign up here: https://alextlc.org/help-us-hit-100/
#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #HelpUsHit100
It's #TimeToTalkDay
Our Support Services offer various ways to talk about your experience with leukodystrophy, including one to one, online community meetings and counselling.
Find out more: https://alextlc.org/how-we-support-you/
#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #TimeToTalk
Our lucky 50/50 Cash Draw winner for February has won £185.50, with number 135!
Sign up now to be in with a chance of winning in the March draw 💰
https://alextlc.org/donate/5050-cash-draw/
#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win
Do you have experience in Charity Retail or Communications?
We are looking for Trustees to join our dedicated team! This is a voluntary, remote role, 6 hours quarterly.
Find out more: alextlc.org/support-us/volunteer/tru...
#AlexTLC #HelpToCope #HelpToHope #Trustees
Our January News Round-Up is out 📩
We will be sharing about our Community Weekend 2026, the opportunity to abseil down the Falkirk Wheel, Rare Disease Day plans and our Teemill shop
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
Happy #BurnsNight to all our Scottish followers!
Burns Night honours the iconic Scottish poet Robert Burns, who wrote the New Year's Eve anthem Auld Lang Syne. Are you celebrating Burns Night tonight? Let us know in the comments 👇
#AlexTLC #HelpToHope #HelpToCope #Leukodystrophy #BurnsSupper
Our January Research Summary is available🔬📃
To view: alextlc.org/research/research-summar...
Sign up to our mailing list: https://alextlc.org/newsletter-sign-up/
If you have any questions, please contact info@alextlc.org
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
Please join us in saying a big thank you to Clare, Steve and family, who raised an incredible £740 for Alex TLC through Steve's 60th birthday celebrations.
https://www.justgiving.com/page/clare-elphick-3
Thank you all and happy 60th Steve!
#AlexTLC #HelpToCope #HelpToHope #Fundraising
Our lucky 50/50 Cash Draw winner for January has won £183.50, with number 105!
Sign up now to be in with a chance of winning in the February draw 💰
https://alextlc.org/donate/5050-cash-draw/
#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win
There's only one place left for the Falkirk Wheel Abseil on 22nd March 2026!
Find out more: alextlc.org/fundraising-event/falkir...
#alextlc #helptocope #helptohope #abseil #falkirk #falkirkwheel #hallglen #laurieston #grangemouth #redding #carronshore #larbert
Teemill are offering free UK Shipping this weekend! No code is needed.
https://alex-tlc.teemill.com/
#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #LeukodystrophyAwareness #Teemill #CyberWeek
Happy New Year to everyone within our community!
Thank you for being part of our Alex TLC family and for your unwavering support 💙
We look forward to facing 2026 together, and the hope and possibilities it may bring 💫
#AlextlcTLC #HelpToCope #HelpToHope #Leukodystrophy
Today we're saying a big thank you to Bethan, who raised £160 for Alex TLC making and selling Gonks in support of her brother, Sam, who lives with adrenoleukodystrophy (ALD).
Thank you, Bethan!
#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #Fundraising #ThankYou #CareAboutRare
Help us continue to provide critical support services for families like Ruth's. Donate today and join us in helping to cope and helping to hope.
https://visufund.com/light-up-the-sky
#AlexTLC #HelpToCope #HelpToHope #LightUpTheSky #Support
