Latest posts tagged with #SpoonieProblems on Bluesky
Side note to this:
There are so many unseen costs due to disability, and most Disabled/Chronically Ill folk just can’t spend the money on things that would make life more bearable. We go without so many things, most consequentially- going without income. #nzpol #SpoonieProblems
I was gonna take a pic for monochrome Monday, but I ran out of spoons.
So maybe just imagine I posted something cute, ok?
#SpoonieProblems
Bleh!
That thing where you accidentally taste your meds. Minor but nevertheless one of them #SpoonieProblems.
Bleh-bleh-bleh
Dealing with #ChronicIllness symptoms Spoonie: *googling* Is this symptom normal Google: WHAT THE F*CK. NO GO TO THE HOSPITAL! Spoonie: *googling* Is this symptom normal? + *disorder* Google: Oh, yeah, you're fine, life sucks doesn't it? Credit: dysfunctionalqueer #SpoonieProblems #SpoonieProbs #LifeWithChronicIllness
Dealing with #ChronicIllness symptoms
Spoonie: *googling* Is this symptom normal?
Google: WHAT THE F*CK. NO GO TO THE HOSPITAL!
Spoonie: *googling* Is this symptom normal? + *disorder*
Google: Oh, yeah, you're fine, life sucks doesn't it?
Credit:dysfunctionalqueer
#SpoonieProblems #SpoonieProbs
An empty powerchair in deep gravel
Aah my nemesis: gravel. 😑
IYKYK.
(At least I made it to about 2 feet from the door)
#WheelieProblems #Wheelchair #WheelchairLife #WheelchairProblems #SpoonieProblems #Disabled
My need to use a heating pad to help lessen the intensity of my body aches versus this hot weather & my heat intolerance. #spoonieproblems #chronicillness #chronicpain
#chronicmigraine #migrainebestie #spoonieproblems #softgritspoonie #sarcasticspoonie #disabilityhumor #notjustaheadache #neurospicylife
#HeatIntolerance #ChronicIllness #SpoonieLife #SoftGritSpoonie #DisabledAndHot #SpoonieProblems #SummerStruggles #Overheating #InvisibleDisability #ChronicFatigue #POTS #MCAS #Dysautonomia
Grand. I’m on two of them. Explains a lot. Check your meds against list below before going out in the hot.
#spoonieproblems #heatintolerance
#spoonie
#medsky
#chronicallyhot
I hear ya.
I had to update my list of meds at a doc today & literally thought “damn that’s a lot of chemicals to keep me semi-functioning”
💊💊💊💊💊💊
I recently graduated to the AM/PM/Night daily pills holders 😱
#spoonieproblems
I cannot make this up...
Insurance Denied Me... AGAIN!!!
youtu.be/ijU2XE3uQik
#ChronicIllness #ChronicIllnessAwareness
#Disability #DisabilityAwareness #SpoonieLife #SpoonieProblems
My wrist keeps wanting to pop out of place which is really less than optimal because I still have things to do today.
#EhlersDanlos #SpoonieProblems
Being a Spoonie is basically a nonstop tug-of-war: youtube.com/shorts/ACMp9...
🧠 Brain fog vs. fatigue
💊 Insurance battles vs. symptoms
⏰ Rest vs. productivity guilt
Which side wins in your life? 👇
#SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar
This awesome woman was highlighted by #ShayneConde, I've subbed up and I'll watch later, when I'm more awake #SpoonieProblems
Do yourselves a favour, follow both of these wonderful women, you'll learn a heck of a lot and become better people for it!
#Chemmpossible
www.patreon.com/posts/130073...
Fibromyalgia spoonie girl in the middle of a flare up but putting on a brave face and smiling through the pain!
🫠 When your chronic illness says ‘rest day’ but you’re already out… 🪦 #FibromyalgiaAwarenessMonth #spoonieproblems
This is what I like to call “ableist asf.” #ableism #SpoonieProblems #disability
I once got “why would you ever travel if it makes you feel this bad” from a NURSE. I informed her how “we like to live life and travel too” like she was a child cause it was time to learn!💅
I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅. I want to see more #SpoonieProblems in books
I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅. I want to see more #SpoonieProblems in books
#AmWriting #YAContemporaryFantasy #ChronicIllnessRep
Flare-up brain:
☑️ Can’t remember if I ate
☑️ Forgot what day it is
☑️ BUT I can rate my pain on a scale of 1–10 like a champ 🙃
📘 Painfully Organised was made for days like this.
No pressure.
🔗 www.amazon.com/dp/B0F5BFFH27
#ChronicIllness #BrainFog #SpoonieProblems #FlareUpLife
At least he has a pretty voice. 🤷🏽
The smells are giving me asthma though.
#spoonieproblems
#chronicillness
one time, at my routine MRI ( #spoonieproblems )
lab tec, obviously prepared to comfort a #sickkid : any questions, sweetie?
me, merely hungry: is there an in-flight meal?
Had good fun yesterday but as usual paying for having left the house for the 1st time in 3 weeks. I slept for 17 hours straight. Still stuck in bed due to pain, but that’s how it goes 🤷♀️ #ChronicIllness #ChronicFatigue #ChronicPain #Spoonie #SpoonieProblems #SpoonieLife
If I leave it off my reassessment paperwork and my GP includes it again, is that "deliberately" not including something, and if I include it this time having not done last time, is that gonna be something they quiz me on and also what do I say? #spoonieproblems #disabilityproblems
#SpoonieProblems when you're (finally) packing things and your back starts screaming because you're bending and moving around while also doing laundry.
Sounds very much like a "take four Aleve and sit/lie very still" kinda night.
#invisibledisability #mask #chronicillnessandme #butyoudontlooksick #spoonieproblems #chronicillnesswarrior #invisibleillness #disabilityawareness #chronicpainwarrior #mcasismylife
Getting REAL sick of this fucking fibro flare. It’s been a week of heightened symptoms, extra severe fatigue & elevated pain levels compared to usual. & bring in this much pain is fatiguing in itself.
#Fibro #Fibromyalgia #ChronicIllness #ChronicPain #ChronicFatigue #Spoonie #SpoonieProblems
The gamble of trying to pick the right day to try a new med in case it goes awry #spooniesky #spoonieproblems #chronicillness
Yes, I've been REALLY active on here today, but I have a legitimate excuse:
TMI #SpoonieProblems Warning: Reason in comments
Tummy flare up tonight 😭 6 am I want to go to sleep. #spoonieproblems
It's a bad sign when you're up early because you have a doctor's appointment, but you're already worn out enough that you're ready to go back to bed. 🙃 #spoonieproblems
Brain fog: when you temporarily don’t have the word “vacuum cleaner” in your vocabulary.
So it becomes: “the thing that’s not a lawn mower. The lawn mower for carpets.”
#SpoonieLife #SpoonieProblems #BrainFog #FibroFog #spoonie
