Latest posts tagged with #lifewithMS on Bluesky
If you’ve ever been told “just sleep more”… you know it’s not that simple.
💬 You’re not imagining it. It’s neurological.
Save this to remind yourself 🤍
#MultipleSclerosis #MSAwareness #MSFatigue #ChronicIllness #InvisibleIllness #BrainHealth #LifeWithMS #ChronicFatigue
On this day, 13 years ago, I was diagnosed with Multiple Sclerosis. Though a tough road for me, so many other people with incurable diseases suffer much more than I do.
#MultipleSclerosis #MS #LifeWithMS #LivingWithMS
More grounded MS education at livewithms.com.
#MultipleSclerosis #MSRecovery #LifeWithMS #InvisibleIllness #ChronicIllness #MSAwareness #GentleStrength #LiveWithMS
Understanding and flexibility make a real difference.
Learn more about living with MS at livewithms.com.
#MultipleSclerosis #MSAwareness #LifeWithMS #InvisibleIllness #ChronicIllness #SelfCare #Empathy #MSCommunity #LiveWithMS
MS may affect your body, but it does not define who you are.
You are more than symptoms, diagnoses, or limitations.
Your value remains whole. 💙
#MultipleSclerosis #MSAwareness #LifeWithMS #InvisibleIllness #ChronicIllness #YouAreEnough #MSCommunity #LiveWithMS
Your pace is not too slow.
Living with MS means honoring what your body needs — and that is progress.
Move at the speed that protects your health. 💙
#MultipleSclerosis #MSAwareness #LifeWithMS #InvisibleIllness #ChronicIllness #ListenToYourBody #SelfCompassion #LiveWithMS
You’re allowed to pause. 💙
Explore support and education at livewithms.com.
#MultipleSclerosis #MSAwareness #LifeWithMS #InvisibleIllness #ChronicIllness #RestIsProductive #SelfCare #MSCommunity #LiveWithMS
Follow @LiveWithMS for understanding, support, and MS education.
#MSAwareness #MultipleSclerosis #InvisibleIllness #ChronicIllness #SelfCompassion #DisabilityAwareness #LifeWithMS #LiveWithMS
With yesterday’s final dose of chemotherapy for the year done, it was time for a longer ride in today’s 80 degree temps 🌞
#Cyclist #Cycling #RideAbike #GravelBike #HiFiWheels #Gravel #GravelRide #GravelGrinder #GravelGrind #RideUK #NeverJustAride #LifeWithMS #iLiveWithMS #MS #MultipleScerosis
A collage of 3 photos. Left: injection diary page of the Kesimpta leaflet it shows the date, a sketch of person to indicate injection site and space for notes. The page covers week 0 and week 1. Right top: the cover page of the Getting to know Kesimpta leaflet. Right bottom: the Kesimpta sled-injection pen.
Here we go #Kesimpta dose 1 done. It’s good to be back on treatment after 3.5 years off #LifeWithMS
We’re listening. What would you like more researchers to understand about MS? 👂💬🧠
MS Awareness Week 2025 - Part 3/3
#refuelms #msawarenessweek #msconversations #lifewithms #msawareness #msresearch #listeningandlearning #patientvoicesmatter #coproduction #researchwithimpact
What’s one MS-related conversation you are proud you had – or wish you had sooner? You never know who needs to hear your story 👇💬📢
MS Awareness Week 2025 - Part 2/3
#refuelms #msawarenessweek #msconversations #lifewithms #speakup #empoweredvoices #yourvoicematters #mscommunity #breakingthestigma
Have you had a conversation about fatigue that changed how someone saw MS? Share your experience below 💙 💬 ✨
MS Awareness Week 2025 - Part 1/3
#RefuelMS #MSAwarenessWeek #MSConversations #MSfatigue #InvisibleSymptoms #LifewithMS #FatigueAwareness #SpeakUp #YourVoiceMatters #MaketheInvisibleVisible
The grandkids get sick and 9 times out of 10 they are still full speed ahead. I get a scratchy throat with a stuffy nose and I feel like I’m down for the count. #LifeWithMS
We live in a world where modern conveniences are everywhere. We have all kinds of things that can work for us and even think for us without having to lift a hand. However, there are still so few things/places that are truly handicap accessible. #LifeWithMS
It’s #MS awareness week - I try and post something about my #LifeWithMS every day this week! For today a short timeline 1st symptoms 2009 - nothing visible on scan, lots of medical gaslighting, right combination of symptoms 2016 > MS diagnosis 11 months later. 1st treatment Tecfidera 2018 > 2021
A mid-run selfie. I’m wearing a running hat, glasses, black top. My face is bright red but I’m smiling. The sun is in my face. I’m holding the running buggy which has its cover up. I’m on a path with trees either side.
I’m in love with my buggy run commute…it’s ~4k and I get to share this with my wee one. We always hope for a high dog turn out #ThisMumRuns #MSRunner #LifeWithMS
Funny how after years of being in a wheelchair, I still walk in my dreams. #LifeWithMS
Most of my supplements come from one company. There’s another one I use too. I used to mock people who used supplements….until I got officially diagnosed. #lifewithMS
Felt good this morning and attempted a day of errands. Went to Costco, IKEA, and Cdn Tire today. I've used all my spoons. I'll probably be in bed for days. #lifewithMS
My watch didn't even track all my steps because I was relying on the cart to keep me on my feet.
Living with MS is like playing a rigged game of bingo where all the prizes suck. From brain fog to doctors who don’t know shit, here are 10 things I’ve learned the hard way about this rollercoaster of a disease. #MultipleSclerosis #LifeWithMS #MS
itreallydoes.com/10-things
When life gives you walking aids, you make... questionable progress!
#MSHumor
#LaughThroughTheStruggle
#ChronicComedy
#OopsICrippledAgain
#LifeWithMS
If you can’t get out of bed to slip on the floor, you are finally afforded the right to wear socks. Some silver linings are also fluffy. #LifeWithMS
Sometimes hearing, “come on, Minnie, you can do it!” is just the encouragement I need from my grandchild to transfer to/from my wheelchair. The enthusiastic “Yay! I knew you could do it. Good job!” is just icing on the cake. #lifewithMS #grandkids
🎉 Happy New Year from the REFUEL-MS team! 🎉
We want to thank everyone who's been involved in the REFUEL-MS journey so far, and we're very excited for what 2025 will bring!
#happynewyear #refuelms #mscommunity #lifewithms #msawareness #msresearch #multiplesclerosis #msfatigue #newyeargoals
https: I’m having trouble putting food in my mouth. I ate my last cheeseburger sideways.
But I did stand up yesterday, so everything’s not completely terrible. My wife has done hours of myofascial release on my legs. 10/10 would recommend. #lifewithms #multiplesclerosis
None of me can move. This is a terrible Christmas gift. #lifewithms #multilesclerosis
MS is like a terrible roommate. It’s loud, messy, and never pays rent. 0/10 do not recommend. #MultipleSclerosis #LifeWithMS
Today’s achievement: I remembered what I walked into the kitchen for… after only three trips! #MS #LifeWithMS #FightMS
