#sma

@smanewstoday.bsky.social

5 hours ago

Understand spinal muscular atrophy and share knowledge with others: https://bit.ly/4fCyvIb

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

1 1 0 0

SMA News Today

@smanewstoday.bsky.social

1 day ago

Learn about SMA Type 2—read the article here: https://bit.ly/4kjNRCX

#SMA #Type2 #Awareness #SMANews #Bionews

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SMA Europe

@sma-europe.bsky.social

1 day ago

✨ 20 years. One community.

Watch The Rolling Story of SMA here 🎥
https://youtu.be/o39rNFzIwDE?si=5Xo5EdH5QKgiBq3D

💜 All together. One goal.

#SMA #WeAreOne

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@follow-the-money.us

1 day ago

Kevin Hern - Integrity Index View Kevin Hern's political integrity grade, campaign financing, and conflicts of interest.

Rep. Kevin Hern (R-OK) disclosed 2 trades:
Traded: Mar 18 | Disclosed: Apr 3

Sold: $SMA ($500K-$1M), $TXN ($500K-$1M)

https://integrityindex.us/candidate/kevin-hern

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SMA News Today

@smanewstoday.bsky.social

2 days ago

Recognize SMA symptoms early and support others on the same journey: https://bit.ly/3UogDan

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

0 0 0 0

SMA News Today

@smanewstoday.bsky.social

3 days ago

See daily SMA sitcom moments—share your funny experiences and connect: https://bit.ly/45z3DVJ

#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews

0 0 0 0

SMA News Today

@smanewstoday.bsky.social

4 days ago

Find SMA exercise tips to help you stay strong, active, and connected: https://bit.ly/4oqyFGC

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

1 0 0 0

Petr Klosko

@klosko.net

4 days ago

Ke změně koridorů samozřejmě nedošlo. Pouze je do Aug.14. uzavřená RWY 06/24 , takže se lítá na RWY 12/30.
BTW, s tím #SDR můžeš zkusit chytat i #ADS-B data z letadel. Např. via #PiAware
Anténu vyrobíš z plechovky od piva , #SMA a kusu drátu 😉
#bastlirna

5 0 2 0

SMA News Today

@smanewstoday.bsky.social

5 days ago

Read about Finkel type SMA and connect with those who understand: https://bit.ly/4mGf9Ef

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

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StockTitan

@stocktitan.net

5 days ago

Strategic Storage Trust VI, Inc. Reports Year Ended December 31, 2025 Results Over the past year, we successfully brought four of our Canadian joint venture properties online, expanding our footprint in the Greater Toronto Area and Quebec, Canada. In addition, subsequent to year-end, we completed construction and commenced operations at our wholly owned development property in Ontario, Canada another important milestone that...

#SMA Strategic Storage Trust VI, Inc. Reports Year Ended December 31, 2025 Results

www.stocktitan.net/news/SMA/strategic-stora...

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NeurologyLive®

@neurologylive.bsky.social

5 days ago

Positioning Gene Therapy in SMA: Insights From 64-Week STEER Study Outcomes | NeurologyLive - Clinical Neurology News and Neurology Expert Insights Nazem Atassi, MD, SVP and Global Development Head of Neurology & Gene Therapy at Novartis, discussed 64-week STEER data and the evolving role of one-time gene therapy in SMA care.

🧬 New 64-week data from the STEER study highlight the potential durability of one-time gene therapy in #SMA

📈 Key outcomes
• +2.75 HFMSE improvement
• +2.93 RULM improvement
• 🚫 new safety signals

Expert insights from Nazem Atassi, MD ⬇️
www.neurologylive.com/view/positio...
#Neurology #GeneTherapy

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SMA News Today

@smanewstoday.bsky.social

6 days ago

Learn about SMA Type 1—find out more here: https://bit.ly/4kLGHao

#SMA #Type1 #Awareness #SMANews #Bionews

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Take Care! Beware Of Mankind! I'm Ronny 🇪🇺📎

@roland-5742.bsky.social

6 days ago

#Tibber und #SMA vom #WR

1 0 1 0

Journal of Neuromuscular Diseases

@journalnd.bsky.social

6 days ago

📄 New study: A novel implantable catheter–port (ThecaFlex DRx) enables repeated intrathecal delivery of nusinersen in SMA.

✔️ 100% implantation success
✔️ 92% received treatment via device
✔️ Promising early safety profile

buff.ly/Fwf37nT

#SMA #Nusinersen #Neurology

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Progress Educational Trust (PET)

@pet-bionews.bsky.social

6 days ago

The Scottish Government have launched a newborn screening programme for spinal muscular atrophy, aimed at enabling earlier diagnosis and access to potentially life-changing treatment.

Read more for FREE in BioNews ⬇️
www.progress.org.uk/scotland-int...

#SMA #NewbornScreening

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SMA News Today

@smanewstoday.bsky.social

1 week ago

Understand how electromyography helps in SMA diagnosis and care: https://bit.ly/4oAJead

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

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SMA Europe

@sma-europe.bsky.social

1 week ago

🔁 Reminder: research never stops.

Progress is built through continuous effort.

📖 https://heyzine.com/flip-book/edcd8c56f5.html

🔬 www.sma-europe.eu/our-call-for-research-pr...

💜 #sma #weareone #awareness #research

1 0 0 0

Sandy Stevenson

@tourscotland.bsky.social

1 week ago

Spring Road Trip Drive With Music On History Visit To The Sma Glen Highland Perthshire Scotland

Tour #Scotland 4K #Spring travel photograph and video Blog with #Scottish music, of a road trip drive on the A822 route on #ancestry, #genealogy, family #history visit to #The #Sma #Glen near #Crieff in #Highland #Perthshire tour-scotland-photographs.blogspot.com/2022/04/spri...

8 2 0 0

SMA News Today

@smanewstoday.bsky.social

1 week ago

Learn about SMA Type 0—get the facts here: https://bit.ly/3ZbrirE

#SMA #Type0 #Awareness #SMANews #Bionews

2 0 0 0

Rob 

@robvandegoor.bsky.social

1 week ago

Nu gaat het interessant worden om alles aan elkaar te knopen via #Homeassistant :

- #Zendure SolarFlow 2400AC accu’s
- #SMA inverter zonnepanelen
- #Peblar laadpaal
- #Dynamischeenergietarieven
- #WeHeat Blackbird

Het gaat de goede kant op. Al vele weken heb ik nul verbruik op mijn meter. 🥳

2 0 0 0

SMA News Today

@smanewstoday.bsky.social

1 week ago

Explore specialized equipment that supports daily life with SMA: https://bit.ly/45KfTmh

#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease

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Rare Disease Advisor

@rarediseaseadvisor.bsky.social

1 week ago

FDA Approves High-Dose Regimen of Nusinersen for Spinal Muscular Atrophy Biogen announced that the FDA has approved a high-dose regimen of nusinersen for the treatment of SMA in pediatric and adult patients.

The @fda.gov has approved a high-dose regimen of #Nusinersen (#Spinraza®) for the treatment of spinal muscular atrophy (#SMA) in pediatric and adult patients, Biogen announced.

Learn more: https://bit.ly/4s7yn8e

#RareDisease #SpinalMuscularAtrophy #MedSky

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Thiard News@F4F

@newsen.bsky.social

1 week ago

FDA Grants Approval for High Dose SPINRAZA to Benefit SMA Patients Cure SMA celebrates the FDA's approval of Biogen's High Dose SPINRAZA regimen, providing hope and improved care for individuals living with SMA.

FDA Grants Approval for High Dose SPINRAZA to Benefit SMA Patients #USA #SMA #Schaumburg #Cure_SMA #SPINRAZA

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NeurologyLive®

@neurologylive.bsky.social

1 week ago

FDA Approves Higher Strength, More Effective Nusinersen Dose for Spinal Muscular Atrophy | NeurologyLive - Clinical Neurology News and Neurology Expert Insights The FDA has approved a higher-dose regimen of nusinersen for spinal muscular atrophy, supported by DEVOTE data showing improved motor outcomes, reduced neurodegeneration markers, and a safety profile ...

#Breaking: 🚨 The @fda.gov has approved a higher-dose regimen of nusinersen (Spinraza; Biogen) for Spinal Muscular Atrophy.

The high-dose regimen is expected to introduce a faster loading schedule for treatment-naïve patients.
Read more: www.neurologylive.com/view/fda-app...
#Neurology #FDA #SMA