#ALS

15 hours ago

Kristin and Todd's 15-Year Reflection: https://bit.ly/4lHgD0b

#ALSNewsToday #SlowProgression #ALS #Bionews

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19 hours ago

Lend your insight: https://bit.ly/4hOnDYO

#ALS #ALSNewsToday #Bionews #LifeWithALS

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20 hours ago

Some days I mourn. Some days I find moments of peace. Often it’s both.

#ALS

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@peaceflowerusa.bsky.social

21 hours ago

🌍 World Health Day | April 7

At ALS United Rocky Mountain, we stand with science—advancing research and care to bring hope to those living with ALS.

💙 Stand with science.
💙 Support research.
💙 Be part of the movement.

#WorldHealthDay #ALSUnited #ALSCommunity #ALS

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✌🌼

1 day ago

Tell Congress: Increase ALS Research to Find a Cure! Contact your Members of Congress today and urge them to protect and increase ALS research funding.

I just asked my reps to reject cuts to medical research & #ALS funding🙏

Trump's 2027 budget proposed $5 billion cut to National Institutes of Health - leading federal funder of ALS research. These cuts jeopardize research, clinical trials & data systems that are essential to finding new treatments.

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Deutsche Gesellschaft für Neurologie (DGN) e.V.

@dgn-ev.bsky.social

1 day ago

PrimeC combines celecoxib and ciprofloxacin in a sustained-release formulation and targets the pathogenic mechanisms of #ALS. In a Phase 2 trial, the treatment demonstrated good tolerability and showed signs of potential clinical benefit. In @jamaneurology.com:
jamanetwork.com/journals/jam...

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Deutsche Gesellschaft für Neurologie (DGN) e.V.

@dgn-ev.bsky.social

1 day ago

PrimeC kombiniert Celecoxib+Ciprofloxacin in einer Retardformulierung und zielt auf pathogenetische Mechanismen der #ALS. In einer Phase-2-Studie zeigte die Therapie gute Verträglichkeit + Hinweise auf einen möglichen klinischen Nutzen.
www.dgn.org/artikel/prim...

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doctorchoc.bsky.social

@doctorchoc.bsky.social

1 day ago

ALS motor phenotypes: a revised ‘OPM’ classification Defining motor phenotypes in amyotrophic lateral sclerosis (ALS) is important for individualized care and optimal therapeutic trial design. The “ALS-OPM” classification is based on the onset region...

🧠 New paper: revised OPM sharpens ALS motor phenotyping for clinic, natural history studies, and trials. More structure, more precision, more comparability. #ALS #ALSResearch #OPM #ALSOPM www.tandfonline.com/doi/full/10....

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Sharing fears with other ALS caregivers can help us feel less alone After her late husband's ALS diagnosis, columnist Juliet Taylor connected with other caregivers who provided support and guidance.

1 day ago

“Hearing from others who’d lived through those same emotions and could both normalize them and offer practical advice felt like the ultimate gift of empathy and compassion” -Juliet Taylor: https://bit.ly/44bgFI2

#ALS

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1 day ago

Learn about sporadic ALS: https://bit.ly/4gQ62zf

The most common form of ALS, making up about 90% of cases. This article covers genetics, symptoms, risk factors, and how it differs from familial ALS.

#ALS #ALSawareness #SporadicALS #ALSCommunity #LouGehrigsDisease #ALSNewsToday #Bionews

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NeuroSense Expands Global Patent Portfolio with Brazilian Approval for PrimeC Composition NeuroSense Therapeutics has received a Brazilian patent for its PrimeC composition, strengthening its IP portfolio as it advances toward a pivotal clinical trial for ALS.

1 day ago

Caregiving can be physically and emotionally demanding. Taking even a few minutes for yourself can make a meaningful difference.

You deserve care, too. If you need additional support, our Care Services team and caregiver support groups are here for you.
#ALS #Caregiving #ALSUnited #Support

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Thiard News@F4F

@newsen.bsky.social

2 days ago

NeuroSense Expands Global Patent Portfolio with Brazilian Approval for PrimeC Composition #Cambridge #Brazil #ALS #NeuroSense #PrimeC

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Fabio da Silva Fernandes

@thestumblingspirit.bsky.social

2 days ago

Ad for episode with title and images of host and guest.

S4.E6. is now live!

ALS affects over 200,000 people globally. In Canada, roughly 4000 people have this disease. Allen Braude talks about his life with ALS and shares his message of hope.

To listen, go to the Linktree in my bio.

#thestumblingspirit #podcast #season4 #episode6 #als #research

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How ALS taught me to feel emotions more deeply Columnist Juliet Taylor used to face difficulties with stoicism, but her late husband's ALS diagnosis forced to her feel her emotions.

2 days ago

“Each of us develops our own means of coping with heartbreak” -Juliet Taylor: https://bit.ly/4a8B2cF

#ALS

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2 days ago

Speak up today: https://bit.ly/3XknAKR

#ALS #ALSNewsToday #Bionews #LifeWithALS #ALSCaregiver

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Frontiers | Early-onset, conjugal, twin-discordant, and clusters of sporadic ALS: Pathway to discovery of etiology via lifetime exposome research The identity and role of environmental factors in the etiology of sporadic amyotrophic lateral sclerosis (sALS) is poorly understood outside of three former ...

2 days ago

This experience has many layers, and you’re navigating them the best way you can.

#ALS

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OHSU Brain Institute

@ohsubrain.bsky.social

2 days ago

New research reviews published geographic clusters of #ALS cases in relation to their demographic, geographic and environmental associations. https://t.co/BdHgf4ZTcE

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Jennifer

@ull-fibre-arts.bsky.social

2 days ago

Late #togueouttuesday #schnauzer
I have had a rough week #ALS #MND
BUT MABEL AWLAYS MAKES IT BETTER 💝

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@thestumblingspirit.bsky.social

2 days ago

Wishing our ALS community families a joyful and hopeful Easter! 💙🐰🌷

May your day be filled with love, laughter, and moments of togetherness. #HappyEaster #ALSUnited #ALSCommunity #TogetherWeEndALS #ALS

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Fabio da Silva Fernandes

3 days ago

Teaser! On the next episode…

ALS and MND are different terms for the same neurodegenerative disease. Allen Braude opens up about his life with this terminal illness.

Tune in to S4.E6. on 04/06/2026.

Go to the Linktree in my bio for more.

#thestumblingspirit #podcast #season4 #episode6 #als #mnd

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Stem Cell Therapy for ALS & MS in China | Cost & Hospitals Explore multidisciplinary stem cell and TCM therapies for ALS and MS in China. Learn about top-tier hospital options, package costs, and eligibility criteria.

3 days ago

Caregiver self-kindness: https://bit.ly/4idV0o1

This reflection offers a grounded look at what ALS caregivers often carry and why giving yourself even a small measure of compassion matters.

#ALS #ALSNewsToday #Bionews #ALSCaregiver #ALSCommunity #CaregiverSupport #ALSJourney

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MedBridgeNZ

@medbridgenz.bsky.social

3 days ago

Exploring advanced options for ALS and MS? Discover how top-tier hospitals in China are integrating stem cell therapy with Traditional Chinese Medicine (TCM) for a multidisciplinary approach.

Read more: zurl.co/OCIqL

#StemCellTherapy #ALS #ChinaMedicalTourism

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3 days ago

How you process things may change from day to day, and that’s completely normal.

#ALS

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3 days ago

Tell your side: https://bit.ly/3Xk1eJv

#ALS #ALSNewsToday #Bionews #LifeWithALS

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3 days ago

The way you handle today is enough, whatever that looks like.

#ALS

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