Thank you @achronicvoice.com for sharing my latest blog post on the reality of living with a #DynamicDisability. It’s very much appreciated! 🫶
0
0
0
0
#DynamicDisability
Latest posts tagged with #DynamicDisability on Bluesky
Posts tagged #DynamicDisability
"That’s the hardest part of a #DynamicDisability: the #inconsistency. If it were always bad, I could brace myself. If it were always visible, I wouldnt have to explain..my #disability isn’t static..It fluctuates..Sometimes it changes by the hour.": buff.ly/Hso6XTl
by @serenebutterfly.bsky.social
7
3
0
1
Thanks. I knelt on one knee to get something for the Easter eggs… and ended up sitting down and scooting bc I could not get back to my feet. Did a few eggs with my son and waited for my husband to rescue me.
Apparently partial kneeling is a no go today. Live and learn. #DynamicDisability
2
0
0
0
We are curious about your thoughts: What do you think of parking and min accessible parking space requirements?
🚗♿️🚗
linktr.ee/thezebraalliance #disability #dynamicdisability #accessibility #accessibleplaces
4
0
0
0
Wuukah e-rig by Leafbuddi
SunsetOG dabs
Goodmornin 🦊☕️ Time to wake'n'bake for our rest day 🍃🍃🍃 Need snacks and snuggles asap!🌻🦊🍃
#stonerfox #dabrig #snuggleslut #smoking #kink #nsfw #audhd #cptsd #lowtempdabs #hemp #cannabis #dynamicdisability #Endometriosis #Fibromyalgia #medicated #stoner #chillin #dabs #thca #thc #cbd #sunsetOG
0
1
0
0
![** youre too young to be [enter symptom] **
Picture of a little boy who looks "crazy" is holding a knife](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:d3oz7ntylr3ufcmjsxijopkz/bafkreig2wnqgaspcwb2f6kgjetpwhow64phxvv4sn3nn4v4ytlaia6tyjq)
** youre too young to be [enter symptom] ** Picture of a little boy who looks "crazy" is holding a knife
Tell us about it 🔪🙈
What are the different "You're too young" comments you have heard?
linktr.ee/thezebraalli...
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #EDS #HSD #meme #memes #ehlersdanlossyndrome
8
1
0
1
Image from @inmyhead_sharon (not sure which platform) about people who are not chronically ill, think folks with Chronic Illnesses arent doing enough to "fix it".
What would you add to this image?
🩵🦓🩵
Chronic Illness Resource Orgs:
Chronic Illness Coalition
Partnership to Fight Chronic Disease
NACDD
Good Days
linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth
5
0
1
0
Listen, I'm not saying I will let my chronic illness beat me. Im just saying if I were a horse, I would have been put down years ago.
Just sayin 🤷♀️😅😉
linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #memes #jokes
6
0
0
0
We feel this in our souls 😅
We highly recommend giving @positivelyrheum.bsky.social a follow for some giggles 😄
#chronicillness #raredisease #chronicpain #invisibleillness #disability #dynamicdisability #EDS #mentalhealth #healthmeme #memes
6
0
0
0
2
0
0
0
I don’t think I’ve ever read anything before in which EVERY SINGLE SENTENCE applied to me. Thank you for validating my experience and my anxieties around having a #dynamicdisability
0
0
0
0
"My anger is the echo of the weight I carry because of this disability; a reminder of the battles fought inside my skin every single day." www.brainlesionandme.com/disability-a...
#Disability #ChronicallyIll #DynamicDisability #NEISVoid #DisabledLife
2
0
0
0
"Each aid corresponds to a different version of me. Some days, I use all three within twenty-four hours, an exhausting one-woman show with far too many costume changes." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #ChronicallyIll #MobilityAids #BabeWithAMobilityAid #NEISVoid
0
0
0
0
Being disabled is a "damned if you know damned if you dont know" stitch with doctors. The more u research the conditions you live with, the less doctors take you seriously because they think yer self diagnosing. The less u know means they can take advantage of you. Never ending cycle.
If willing, please share your personal experiences with this 🩵 ... our favorite thing, gaslighting 😒🙃
linktr.ee/thezebraalliance
#disability #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #dynamicdisability #mentalhealth #gaslighting #healthcare
8
0
2
0
*snorting lines of turmeric powder off of a plate of vitamin C through a straw made of calcium carbonate, whilst standing in downward dog and wearing a jump suit made entirely out of Chakra focusing gemstones* "Am I health yet Margaret? Am I trying hard enough?!!"
Might be the best "all natural treatment" meme ever 😂
linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme
6
0
0
1
"I am bracing. I am bracing for the next moment when my body will betray me. All too aware that it will do so again, again and again." www.brainlesionandme.com/disability-a...
#ChronicIllness #ChronicallyIll #Disability #DynamicDisability #NEISVoid
0
0
0
0
"On good days, I feel dishonest calling myself disabled. On the days I look fine, I feel as though I break an unspoken rule about what disability should look like." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #NEISVoid #Disability #ChronicallyIll #DifferentAidsForDifferentDays
2
0
1
0
Thank you to @achronicvoice.com for sharing my latest blog post on what it’s like living with a #DynamicDisability! It’s very much appreciated! 🫶
2
1
0
0
How's your brain? A bit too gooey LOUD! Haunted At max capacity Too thinky Not thinking enough Fragile Victimized by this cruel world Sunny Do not disturb mode Detached All shook-up Foggy I want a refund (lol) Full of silly songs Sparkling
Describe your sad: BIG sad small sad Light sprinkling of sad Rising sad Sharp sad Confusingly beautiful sad Heavy sad Creeping sad Sad on toast
How are you feeling?
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
11
4
1
0
How do you handle unsolicited advice?
🩵🦓🩵
#chronicillness #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD
7
1
0
0
"Every morning, I wake up & feel a quiet kind of #betrayal. With a #DynamicDisability, my #body, once something I trusted without question, now greets me with an ache I never agreed to. I lie there..taking inventory.": buff.ly/NOz0KLn
by @serenebutterfly.bsky.social
#ChronicPain #disability
9
2
0
1
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #InvisibleDisability #ChronicallyIll #ChronicIllness #NEISVoid
4
0
2
0
"Rest is both an act of resistance and resilience for me." shorturl.at/mVTe0 via @huffpost.com
#Disability #DynamicDisability #invisibleDisability #DisabledVoices #DisabilityAwareness #DisabledLife
2
1
0
0
😴 Did you know there is a "right" and "wrong" way to nap?
😴 What are your nap tips?
linktr.ee/thezebraalliance
#chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth #invisibleillness
4
0
0
0
"Inside my body, the rules rewrite themselves without warning. It feels like being gaslit by my own body. I insist I’m fine. My body quietly, stubbornly disagrees." www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #ChronicallyIll #InvisibleDisability #DynamicDisability #NEISVoid
2
0
0
0
"Do you think chronic pain has affected your personality?" Me: (Picture of a vampire) * hissing * By @endohumor
🧛♀️😆
linktr.ee/thezebraalliance
#chronicpainmeme #meme #chronicpain #chronicillness #EDS #invisibleillness #disability #dynamicdisability
10
0
0
0
My disability isn’t static — it shifts and fluctuates.
I wrote about what it’s like to live in an unpredictable body.
Sharing this here in case it resonates with anyone.
www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid #InvisibleDisability
3
0
0
0
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to."
www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #DynamicDisability #ChronicallyIll #NEISVoid
0
0
0
0
Having a Chronic Condition but pretending its a hobby: 1) Spending lots of money on paraphernalia (like medication) 2) Reading lots about the hobby 3) Looking at other hobbyists online 4) Not going out because you're busy with your hobby 5) Going to meet ups (docs, therapists, etc) 6) Finding a new hobby (new diagnosis) By @twisteddoodles (not sure which platform)
Sounds so much more fun when you put it like that 😄🫠😉
🦓 linktr.ee/thezebraalliance
#chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth #healthmeme
8
0
0
0