Latest posts tagged with #cvid on Bluesky
Running two lines instead of my usual three
One of the needles directly into a nerve. Once you take a needle out of the skin you are Not supposed to use it again
I use a High-Flo 3-Leg Set that cannot be separated I just use the other two lines (needles). It increases the overall infusion
#cvid
The March issue of Annals of #Allergy, #Asthma & #Immunology is everything #Immunodeficiency. A new #PracticeParameter to an outstanding review of #CVID - this issue is packed with info so you can provide up-to-date care for your patients! @annalsacaai.bsky.social #MedSky
www.annallergy.org/current
Possible summer surge. Be alert and safe. #immunocompromised #covid #cvid #getvaccinated #booster #bekind #zebra
Prisci is going to the hospital because her infections are starting to be unmanageable at home. I wish I could help her more but I can't until next month.
If anyone wants to help you can, by sending her a dono through her streamlab : streamlabs.com/priscitv/tip
#vtuber #vsky #CVID #disabilities
Side table in a bedroom covered in medical supplies including infusion kits, needles, a syringe and HyQvia medication.
A bedroom with side table containing medical supplies for infusion, a sharps bin and a hospital grade pump next to the bed.
Today was infusion day for me, which comes once every three weeks. I get to top myself up with fresh new antibodies. It requires turning my bedroom temporarily into a hospital! I've gotten used to the process after 6 months of doing it. A bit sore tonight and exhausted. #immunocompromised #cvid
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy
Oh yay!
It's SCig day!
That's right, my weekly home immunoglobin infusion day.
Three needles in the tummy today
Remember that donating Plasma and Blood helps to Save Lives! π©Έ
#cvid
you would see the shadows under my eyes or my hearing aid wires - but you don't see the cardiac, respiratory and #dysautonomia that make climbing stairs dangerous/nearly impossible for me. You don't see when I've spent four and a half hours having an infusion for #CVID. 4/
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
IgA defects in #CVID lead to bacterial translocation, increased serum Ξ³-interferon, and BAFF, say Hsi-en Ho, Charlotte Cunningham-Rundles (Icahn School of Medicine at Mount Sinai) and colleagues: rupress.org/jhi/article/...
@clinimmsoc.bsky.social @esidsociety.bsky.social
#Autoimmunity
#RareDiseaseDay is coming up next month. Here's my story, shared with RDD several years ago:. #CVID #PrimaryImmunodeficiency #hypersomnia
www.rarediseaseday.org/heroes/hidin...
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
Ho, Cunningham-Rundles et al. show that bacterial transcytosis in common variable immune deficiency leads to the production of IFN-gamma and other inflammatory signals in subjects who develop the non-infectious complications found in this immune defect. rupress.org/jhi/article/...
#CVID
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
Sometimes I watch
Gusts pushing through leaves
Believing I could be a kite
Entering the streams
Kindly guiding my fate
B-cells are not my life
#cvid
Sitting in the airport trying not to stare at some of the strange agents. Found this medical mystery article from the WaPo about me and how I was diagnosed with #cvid. Posting in case it helps someone. @immunedeficiency.bsky.social #dis #chronicillness #chronicallyawesome #primaryimmunodeficiency
A CVID (Common Variable ImmunoDeficiency) barbie doll wearing a t-shirt saying "JUST LET ME SIT DOWN" A sign on the box saying SYMPTOMS: Dizziness, frequent infections, autoimmune disorders, avoiding crowds. To the right of her is a chair with an IV bag above it. Two spray bottles 1. Antibiotics 2. Germ water.
Someone in a #CVID group on Facebook had #ChatGPT create this. She forgot #MASK and a #PORTCath in her chest...otherwise...I get it!
#ChronicHealth #Lupus #RA #PrimaryImmunodeficiency #CommonVariableImmunoDeficiency #IVIG #SCIG
An evil looking ram with very large horns stands on the side of a bedroom, to the left of the bed. Caption reads: "When you try to pronounce the names of your prescriptions...but accidentally summon Satan instead"
πI feel this way EVERY DAYπ€£
#ChronicIllness #CVID #COVID #LongCovid #PrimaryImmunodeficiency
Damn "Couch" Day
Fight as I might I need to lay down and rest
Infusion will have to wait for tomorrow or Friday.
Too exhausted, fatigued to focus on prep and Infusing.
Sometimes I wish I had a home nurse to come hang on these types of days.
Anyway, Oh woe is me.
#cvid
A personal first hand account of a young woman with CVID,
Common Variable Immune Deficiency.
This is what I am diagnosed with, CVID aka common variable hypogammaglobulinemia, late-onset hypogammaglobulinemia, or acquired agammaglobulinemia.
#cvid
Plasma saves lives.
If youβre able, donate. Your hour could mean someone else gets another year, another chance, another story.
#cvid
Infusion day
Life saving treatments that also help protect (hopefully) against known Comorbidities that increase with CVID.
If you have any questions about CVID, PIDDs or SCig (subcutaneous infusion) please feel free to ask.
Dont Forget to Donate Plasma!
#cvid
#PIDD
#immunoglobulin
#scig
FUN FACT: Some of us manage to contract highly resistant bacterial infections &it's not as fun as you'd think.
Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.
#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI
focus on novel diagnostic approaches. The emerging implementation of validated automated decision support tools is one approach that holds promise to decrease the diagnostic delay observed in more than 80% of patients with #CVID (23, 103).
Remarkably, the authors also observed that diagnostic delay had not decreased over a timespan of more than 30 years, suggesting that educational awareness efforts and diagnostic improvements have not yet made a measurable impact on timely diagnoses. These data strongly support the need for a
#CVID
Illness is a red pill moment. Once you see reality differently, you canβt go back.
#cvid
Time for SCig: Subcutaneous Immunoglobulin therapy
I have #CVID: Common Variable Immunodeficiency
What is that? It is a primary immune deficiency disorder characterized by a low level of antibodies (immunoglobulins) in the blood, making individuals susceptible to recurrent and severe infections.
