Latest posts tagged with #neisvoid on Bluesky
We're getting ready to start bingeing season 2 of #Bloodhounds, starting with the season 1 finale
Hop in now so you don't miss it!
mzelo.com/app/rooms/ch...
#neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMarathon #cannabisculture
If we're bombed with or without nukes tonight, I just want to let all of you know that I love you and appreciate every single one of you. 💜 #spoonie #chronicpain #neisvoid #disability #SPN #SPNFamily #Supernatural #FuckTrump #FuckCongress #FuckTheGOP #FuckMAGA #25thAmendmentNow
To whom it may concern.
#NEISVoid
#LoveontheSpectrum is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Docuseries #spoonie #neisvoid #neurodivergent #DisCo #TinusFavoriteTings
"And my all-time favorite #trigger for #nasal migraines? #Breathing through my nose. I wish that avoiding cheese and wine and air could magically cure me, but sometimes #migraines happen without an obvious trigger.": buff.ly/tHgq6i4
by @laurainthebardo.bsky.social
#ChronicPain #NEisVoid #spoonie
Goddammit, my PT appointment today got auto-cancelled AGAIN! When I called and asked why, they just said it said Cancellation-reschedule. Grrrr! Oh well, at least I have myofascial release therapy tomorrow and next week, in the interim. 😔 #chronicpain #neisvoid #spoonie #disability
"It’s Often Not About “Bad People,” But “Bad Structures”
What I particularly feel is this:
Even when no one is especially evil,
the structure is so bad that people still get crushed.": buff.ly/ALo7lXW
by kenken02122000
#HealthcareSystem #healthcare #society #career #NEisVoid
Hop into the #ChronicLoaf stream to catchup on season 1 on #Bloodhounds (the besties buddies bros show) tonight before we start season 2 tomorrow
mzelo.com/app/rooms/ch...
#MutualAidMarathon #ForTinu #spoonie #DisCo #cannabiscommunity #insomnia #NEISvoid
I'm sorry that I've had so much going on lately everyone I feel like people probably think I'm a Negative Nancy on here.
I hope that me talking about my struggles encourages other people going through similar things in the #NEISVoid community and let's people who others are going through it too.
just finally resolved a 9 year insurance red tape thing that would ~seem~ to be resolved
... until it arose, zombie-like, to completely fuck all medical billing until I called the correct office and reset the cycle
#NEISvoid
#FireandIce (1983) is playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #animation #ForTinu #NEISvoid #mecfs #DisCo #spoonie #vintageanimation #MutualAidMovies
I wish Tyler understood more about how much adrenaline masks pain and how delayed it can be. 😔 #chronicpain #spoonie #neisvoid #medsky #disability
I had to cancel a doctor's appointment I've waited for since last July. I was just too fatigued and tired to safely drive and he doesn't allow video visits for first appointments.
#NEISvoid
#TheGreatNorth is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #animation #neisvoid #mecfs #DisCo #ForTinu #spoonie #cannabiscommunity
Antiphospholipid Syndrome Emergency — Ovarian Cyst Ruptures. www . a chronic voice .com (A stethoscope has been laid flat in the shape of the pelvis, and joins with a paper cut-out of a pink uterus. Flowers and a menstrual cup are scattered everywhere.)
"It can be tricky to perform #surgery on a patient with #AntiphospholipidSyndrome, as I had the potential to clot whilst still #bleeding. That can quite literally, make a bloody mess of things.": buff.ly/YPGzS6U
#MondayBlogs #BloodClots #ChronicIllness #RareDisease #EmergencyDepartment #NEisVoid
#NEISVoid CW ableism
It hurts so much when family members that are some of the only support you have to survive try to Gaslight you about your own health condition.
The betrayal trauma cuts deep. I got told today that I don't need the black mold cleaned out of my washing machine. 1/
“Even sitting at the #piano. The place that once felt like oxygen became something my #body could no longer hold. Notes I used to float through now feel heavy, unsteady, often impossible.”: buff.ly/6zmzSaK
by sunbeamacres
#ChronicIllness #NEisVoid #disabled #hope #despair #grief #human
"Aztec Batman: Clash of Empires" is starting now in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #animation #ForTinu #DCcomics #Batman #spoonies #NEISvoid #wakenbake #cannabiscommunity
day five of the campaign.
we're up to nine donations now. I'm proud of us! thank you for giving me something to count on when everything is so uncertain.
I just want to be able to access care like everyone else.
www.gofundme.com/f/help-morie...
#NEISvoid #helpsky #signalboost #helpfolkslive
S1E1 of the series #Watson just started in the #ChronicLoaf stream
This series was recently canceled but I'm seriously hoping we can still #SaveWatson, and it'll get picked up by somewhere far better than CBS
mzelo.com/app/rooms/ch...
#MidnightMysteries #DisabilityRepresentation #NEISvoid
I feel nothing. I feel weight. The weight of nothing bearing down on my chest, crushing against my lungs. Breathing requires conscious effort, as my body has forgotten its natural rhythm.
"I feel nothing. I feel weight. The weight of nothing bearing down on my chest, crushing against my lungs. Breathing requires conscious effort, as my body has forgotten its natural rhythm": buff.ly/04DLdQe
#depression #MentalIllness #ChronicPain #MondayBlogs #NEisVoid #disabled #BadDay
Anybody else have an oh-shit-I’m-masking-around-the-people-who-love-me-&-need-to-know-how-sick-I-am moment?
‘Cause wow that sucked & has taken a couple of days of having to be honest w/myself about it that haven’t been at all fun.
#pwme
#pwlc
Or anybody out in the #neisvoid ?
“You’re lucky you don’t have to work,” is often said to disabled people.
My guy,, I have NINE drs appts this week!!
9 appts in 5 days.
6 last week. 4 next week.
I wish I could work. I can’t.
Being disabled is not a vacation.
#NEISVoid
#Disabled
#Disability
#Spoonie
#Tubie
#Gastroparesis
#EDS
Great news! I finished the book that was at 61% 🙂↕️
(And then checked out another book 🙈)
If I have to be disabled and unable to leave the house most of the time, at least I have books to keep me company.
#BookSky
#AmReading
#Libby
#SupportYourLocalLibrary
#Disabled
#Disability
#NEISVoid
#Spoonie
afternoon update. we're at eight donations now.
Idaho is a hellscape for the marginalized. if anyone can speak to that, it's me—a disabled, bedbound person. I can't even leave my house, and I've felt the brunt of it.
I want my chance to fight for what's right.
gofund.me/ee808b002
#NEISvoid
I shared this super early this morning, but in case anyone missed it...
#cptsd
#neisvoid
#bipolarsky
#recoveryposse
Good news everyone!
Something is actually helping my burning eyes from my MCS/MCAS (multiple chemical sensitivity or mast cell activation syndrome)
Got prescription Cromolyn Eye drops and I tell ya what it's like I got new eyes. #NEISVoid
Our annual Easter binge of "The 10th Kingdom" is starting in about an hour in the #ChronicLoaf stream
Hop in soon so you don't miss out on one of our favorite family traditions
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #SexTalkSunday #MutualAidMarathon
[Food]
istg these colonoscopy prep instructions are Not Accessible to this particular Autist
allowed: spices, broth, clear jelly, ketchup, peeled carrots
not allowed: seeds, red/orange/purple beverages
...
ME: So can I eat purple carrots? What about coconut aminos? Turmeric??
#NEISvoid
