Ob einen. Arbeitstag ausruhen (waren heute 8 Std) hier zum neuen Goldstandard nach Überschreitung der #Pacing Grenzen wird? 👀
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#pacing
Latest posts tagged with #pacing on Bluesky
Posts tagged #pacing
Step conter 7390 steps
KiActiv movement graphs as described
Visible Health pacing data
☀️Wednesday
3 separate strolls today, making up a total of 3.5 miles walked
I lay down for most of the rest of the day, to compensate.
9.5 hours Sedentary (lying or seated)
2 hours of Light movement
Limited myself to just 1 hour of Moderate movement
#Pacing is so much easier when on holiday!
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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of the decision making process (like talking through the process on this poster) can really help them gain a better understanding of what you deal with and what you need.
#Hypermobility #EDS #Fibro #ME #Lupus #Pacing #Arthritis
www.stickmancommunications.co.uk/product-page...
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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Irgendwann vor Ostern geduscht. Morgen endlich mal wieder Physio,hoffe der Rucken wird wieder eingerenkt,seit Tagen wieder Rippe verdreht.
Heute mal duschen. Muss man sich alles einteilen. Baseline,ne.
#pacing
#MECFS
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Starting the day Stable and Ready allows me to be more active.
But I have to be careful; I know my limits and I wouldn't wish #PostExertionalMalaise #PEM on my worst enemy 😌
Avoiding overexertion by careful #Pacing
#LongCovid
bsky.app/profile/benk...
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Pacepoints summary from Visible Health
And, whilst I've been approaching my #Visible_health daily pacesetter, I'm going to avoid catching-up with it; I'll easily stay below my new daily pacepoints quota of 22 🙏
#Pacing to avoid #PEM
#LongCovid
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Visible Health heartrate graph showing regular rest periods
In the garden ☀️
#Pacing to avoid overexertion
#LongCovid
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If you write slow prose you are reducing your reading audience and you are aging your demographic. To understand the today speed you have to read the top new novels in your genre. That pacing will be present. You learn the pace of current readers.
#writingcommunity #booksky #pacing #writinglife
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For those who are interested and who've got this far, my main #Pacing approach involves constant Heartrate Monitoring, with overall daily limits via #VisibleHealth and constant avoidance of a maximum heartrate of over 130bpm, movement monitoring via #KiActiv and a constant focus on Resting my body.
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I also now avoid the daily Muscle Aches and Muscle Weakness by RESTING for around 20 hours each day and lying down or putting up my feet as much as possible; also keeping my elbows close to my body.
#Pacing to avoid #PEM is a full-time job. I have become a part-time teacher.
#LongCovid
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No fatigue on 3 evenings. Fatigue most days. Severe around 14 days over the January to April period 2024
And I spend so much of my time and energy #Pacing to avoid the debilitating FATIGUE, making me feel like I'm being POISONED.
I don't experience the fatigue any more. This was my self-reported #LongCovid Fatigue every evening between January and April 2024 😌
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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" #Pacing with #ChronicIllness asks you to leave margin, even on good days. It asks you to stop while you still feel #capable. It asks you to trust that protecting tomorrow is more important than maximizing today.": buff.ly/AMreIeo
by @thethrivingspoonie.com
#disabled #spoonie #InvisibleIllness
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3.9 of today's 30 pacepoints used. Graphs show that I'm well behind my pacesetter.
...and I'm still ELEVEN #VisibleHealth pacepoints behind today's pacesetter because I LAY DOWN ALL MORNING.
This isn't an 'active' lifestyle, but I'm getting to actually RUN - albeit for just a couple of minutes 😄
#Pacing successfully to avoid the debilitating #PEM associated with my #LongCovid
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Visible Health heartrate graph showing 3-minute spike of exertion when on treadmill
Back at the gym, after 11 days off because of the dental infection and antibiotics.
Taking things easy. Just over a minute of running on the treadmill, which felt AMAZING...
But #pacing!
Reclined on the floor now 🙏
#LongCovid
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@mysticartsdm.bsky.social | Mystic Arts: "Why D&D Cliffhangers Are Easy, Actually!" | #TTRPG #Pacing #Scenes #Choice #Risk #EmotionalImpact #Information
www.youtube.com/watch?v=O8aI...
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KiActiv movement graphs. 1 hour 40 minutes of Light movement. Just 38 minutes of Moderate movement. My daily 'limit' is not much more than 60.
4.4 out of 30 daily pacePoints
3 miles walked! VERY slowly. More restful sitting on the way home 🙏
Well-within my #KiActiv movement limits and my #VisibleHealth PacePoints (heartrate-based).
Very tired - but not fatigued.
#Pacing to avoid debilitating Post-Exertional-Malaise #PEM
#LongCovid
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0.8 out of 30 pacepoints. 13 behind today's pacesetter
Having said all that 👆 I've found the simplest movements exhausting this morning - I'm clearly exhausted from a busy Spring Term 🙏
Just 0.8 #VisibleHealth PacePoints used so far today (it's 13:15) and I'm starting to feel Human again.
I feel a local stroll coming on 😊
#LongCovid #Pacing
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Screenshot from near the end of my KubiosHRV morning check-in. Resting heartrate 52bpm. Heartrare trace graph.
17 days of choosing what to do, and when.
This makes #Pacing easier 🙏
As long as I don't get overexcited and push my body too much, and if my dental infection stays suppressed, there's an opportunity to Heal...
Measuring my Readiness using the #KubiosHRV app...
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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Ben, you are the first person I have seen/heard mention #pacing with #PEM! It has been a puzzle to me, as I learnt about pacing in 2017.
So glad to see you put them together!
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16.8 out of 30 daily pacepoints. Well below my pacesetter line
Minute by minute heartrate for today
...But I managed to keep my Heartrate low and my #VisibleHealth PacePoints use down as a result 👇
This is good.
Turning off ALL alarms 😊
#Pacing to avoid the debilitating #PEM associated with my #LongCovid
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And we're both on the #pacing page! 👏👏🤗
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Unser #Aufzug hat vorhin mal wieder den Geist aufgegeben. 🫠
Ich deklariere den erzwungenen #Hausarrest👩🦼jetzt einfach mal um und nenne ihn Power- #Pacing. 😆
#Barrierefreiheit #Krankheitsgewinn🤡
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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Visible Health heartrate graph showing reduced HR
An hour later and I've re-set my nervous system and brought my heartrate back down 👇
My daughter will be joining me in a few minutes and I'll be less distracted by my #Dysautonomia; the nagging discomfort from my recurring tooth infection is an on-going annoyance!
#Pacing for #LongCovid
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Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
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