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#PoTS
Latest posts tagged with #PoTS on Bluesky
Posts tagged #PoTS
Recently, I've been repeatedly tagged by people who mistakenly believe my account belongs to astronaut Christina Koch.
I'm not her.
I can barely make it to the next train station, let alone into space. I'm severely ill with #MEcfs #POTS #CCI #MCAS and housebound most days.
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TW: medical gaslighting, bloody images
As someone who has experienced gaslighting from medical professionals (among others), I found this video cathartic. And the creativity and talent of the artist, Ren, is off the charts.
#MECFS #disability #LongCovid #Chronic #pots #Lyme #mentalhealth
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Anwesenheitsliste (Physiotherapie, Studiensemester 2026, Lektor*innen Verena Hackl, MSc): darauf (abgeschnitten) USTP MA-Karte & Aranet4: 557 co2ppm/21.6°C/28 Luftfeuchtigkeit
Leinwand Hörsaal: Begriffe ME/CFS, PoTS, SFN, EDS, MCAS und Long Covd/Post-COVID-Syndrom rund um Fragezeichenblase angeordnet (Rechts oben: USTP Logo - rechts unten: 9, EUDRES)
Vortragsbildschirm mit Folie: ‚ME/CFS Pathophysiologie (unvollständig)‘ Darunter Stichpunkte zu Veränderungen der Skelettmuskulatur (z. B. Zunahme von Typ-2-Fasern) und beeinträchtigter Sauerstoffdiffusion, die nicht durch Dekonditionierung erklärbar sind. Weitere Inhalte beschreiben Proteomik-Ergebnisse nach Belastung (CPET) mit anhaltender Immun-, Stoffwechsel- und neuromuskulärer Dysregulation, einschließlich veränderter T- und B-Zell-Signalübertragung, verringerter IL-17-Aktivität und erhöhter Glykolyse/Gluconeogenese. Rechts oben: Logo USTP. Unten Hinweise auf Studienquellen und eine Lehrveranstaltung.
Jetzt wär‘s nur noch schön,wenn der Zugbetrieb STPÖ-Wien wieder den Betrieb aufnehmen würde… 😅🙈
#LearnaboutME #PAIS #LongCovid #PoTS #Physio
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New review on #POTS
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Something I realized...
Lotta Mechanics treat their cars better than some Doctors treat their patients. That's pretty fucked up if you think bout it.
#chronicillnesshumor #humor #fuckedup #chronicillness #disabled #disability #jokes #eds #pots
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How the Psychiatric Model of #ME works... This is a cartoon in 7 boxes which begins with an outline of the psychiatric attempts to take control of the illness known as z#ME In 1992 the Wessely School gave directions that in MCFS the first duty of the doctor is to avoid legitimisation of symptoms; in 1994, ME was described as merely "a belief"; in 1996 recommendations were made that no investigations should be periormed to contim the diagnosis, and in 1999 patents with ME/CFS were referred to as "the undeserving sick". Box one - a finger is pointing judgementally at a very confused person. Caption “You're told you don't deserve help” Box 2 - a miserable person is sitting on the floor with knees drawn up. Caption “Your experience is being denied” Box 3 - a person is crumpling under the pressure - caption “Your support network Is denigrated” Box 4 - a crumpled person is in a cage - caption “You can't leave your house” Box 5 - death is stalking your world - caption “You're afraid of dying but can't access healthcare” Box 6 - a person is screaming - caption “You cannot trust the people closest to you” Box 7 a Wise Cat is saying “Has anyone else noticed that the psychiatric model of #ME is really just a form of COERCIVE CONTROL?” The cartoon maker is #FanningTheFlames
Bait and switch AND coercive control. Grrrrr
#ThereForME
@theguardian.com
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@meassociation.org.uk
@longcovidsupport.bsky.social
@davidjoffe64.bsky.social
@nhsengland.bsky.social
@thelancet.com
@rcgpt.bsky.social
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“I am all for pushing my #limits to help fuel #adaptation with #POTS ..But, I only have a limited amount of energy & verticalness per day & I would much rather use that actually doing the #LevineProtocol.”: buff.ly/qtuh1IA
from @themightysite.bsky.social
#ChronicFatigue #POTsie #disability
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Eight "crumb" quilt blocks arranged in 2 columns of 4, attached by thin strips of mottled charcoal grey, lays on the grass. The left hand column are all made of red scraps in various shapes and sizes. In the right hand column, only the middle two blocks are red, while the top and bottom are orange. Some fabric patterns include seashells, robots, flowers, skulls, and celtic knotwork.
Eight "crumb" quilt blocks arranged in 2 columns of 4, attached by thin strips of mottled charcoal grey, lays on the grass. The top two blocks in the left hand column, and bottom blocks of both columns are made of blue scraps in various shapes and sizes. The top block in the right hand column is green, the middle two blocks are turquoise, as well as the third down on the left. Some fabric patterns include owls, space, yoshi, space invaders, batman, koi fish, batik.
Feels good to be back at work on my rainbow crumb quilt. The rest of this top should come together pretty quickly (for me) so long as I don't let my newfound ability to do upright tasks for longer w/o breaks (thnx #POTS meds) screw up my pacing for #hEDS joint care, & cause a flare
#fibrofiberartist
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If you've got it...there's hope.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema 💕 #Wellness
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Another day in the #POTS life. Had grocery money today so I had groceries delivered as it was a load of heavy stuff; while that's extremely helpful, I still have to carry them up 1 small & 1 large flight of stairs. Putting them away is orthostatic nightmare (iykyk). Then the DME place texted.. (1/4)
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Teal text reading “Bundle 3” above photos of the prizes listed in the caption Bundle 3: Drawn poorly zine Collage commission & 3 prints (either monochrome or collage) from Burn your bones Libro.fm token from Fran Leftbians necklace of choice
White text on a pink background reading “About Nevra: Nevra’s a community organiser with Severe M.E. in Karachi, Pakistan, & a major advocate for people with M.E., particularly in the Global South. Her health is becoming more & more critical, & she’s been experiencing paralysis, anaphylaxis, & multiple skin infections among many other symptoms. She desperately needs your support to prevent her having to return to a DV situation. All funds raised will go towards safe housing, carers, & treatment for our dear friend.”
All funds raised will go towards safe housing, treatments, & carers for our dear friend 💜
#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid
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Promotional graphic for the StudyME Registry. The background shows blurred researchers working in a lab. Text on a white banner at the bottom reads: “Do you want to help speed up the research process? Now you can! Join the OMF StudyME Registry: www.omf.ngo/studyme.”
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas.
👉 Sign up today: https://www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
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I took a short walk yesterday (1/4 mile) to the mailbox and back.
My Fitbit thinks I ran a marathon due to my blood pressure, pulse, and oxygen level.
This is #lifewithpots
This is why "go for a walk" or "just exercise" isn't sound advice for those of us who suffer from this
#pots #potsawareness
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Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness
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I use to feel shame as I got sicker and relied more on the internet for finding community.
That is totally gone now.
People who don’t have Long Covid will never understand what going through this is like.
Social media is a lifeline for every part of this disease.
#longcovid #mecfs #pots #mcas
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Thanks to the folks that called out that she had POTS before the pandemic.
I’m so happy to see her mentioning #longcovid #mecfs #pots and #eds here.
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How about both?
#BlogPost #GutHealth #Nutrition #Diet #Microbiome #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #HappyGutHappyLife 💕 #Wellness
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#POTS explained: The disorder that led OpenAI exec Fidji Simo to take medical leave
www.businessinsider.com/what-is-pots...
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to what to expect from me so they don't stress - and I can be more comfortable doing things differently, I also use it as a reminder to myself that this is something I need to do.)
#PoTS #Autism #ADHD #Pain
This card is from www.stickmancommunications.co.uk/product-page...
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This fidget card says "I fidget or move to manage a condition/disability. Don't expect me to sit or stand still. Moving or fidgeting helps me to function." - with a smiling, fidgeting stickman illustration.
Fidgeting is often considered bad manners, but it can also be an essential part of managing a disability/health condition. E.g. sensory regulation, helping someone with ADHD to focus, reducing pain, even helping remaining fully conscious with #PoTS! So many reasons that we might need to move. -
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Powerpoint-Folie (Seite 75): "ME/CFS: Pacing = „Therapie“ der Wahl Strategie, um alle Arten von Aktivitäten (physisch, kognitiv, emotional, sozial) zu managen und folglich Symptomverschlechterungen zu vermeiden bzw. zu reduzieren Aktivitätsmanagement ≠ (kausale) Behandlung Vorhandene Energie soll ein- und aufgeteilt werden, ohne dass Belastungsgrenzen überschritten werden + Pacing Grafik der Deutschen Gesellschaft für ME/CFS e.V." Rechts oben: blaues Logo und "Gesundheit University of Applied Sciences St. Pölten" Rechts unten: "EUDRES" Links unten: "Physiotherapeutische Anwendungsfelder Organsystem | SoSe 2026 | PAIS – ME/CFS & PoTS | V. Hackl"
Im Osternest gefunden: ein neues Skript. 🐇🤓
#PAIS #MECFS #PoTS
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and the building up of these critical and empathetic notions helps ameliorate some feedback and crisis
accepting ambiguity is critically sound I guess
any fn way #pots #hyperpots #potslife ("all the people..")
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I really hate having a dynamic #disability. If I didn't let my homie know in advance I was having issues with my #ARFID and #POTS and might be unavailable to play this weekend I'd have someone to play a Stardew Valley with. If I don't warn in advance and then have to bail then I'm the asshole.
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idk wtf I did but my blood is just NOT happy today 😭 so no stream today either (lowkey furious :/) #POTS
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Did you know about these people and their chronic illnesses?
#EDS #MCAS #POTS #ChronicIllness #Representation #HolisticHealth 💕 #Wellness
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I hate POTS! 💢
I am back on medication for it and still passing out!
What more does my body need?!
I have insomnia and even on medication for POTS, I STILL pass out throughout the day!
This is just so... frustrating...!
😭
#POTS #Dysautonomia #Syncope #ChronicIllness #Disabled
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HAPPY EASTER
This Easter, Workwell celebrates hope, resilience, and community. Thank you for helping us empower patients and advance evidence‑based research. Your support makes a meaningful difference.
#HappyEaster #MECFS #LongCOVID #HOPE #PT #PEM #POTS #StopRestPace #DoNoHarm #nonprofit #Science
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