If you've got it...there's hope.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema 💕 #Wellness
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#mcas
Latest posts tagged with #mcas on Bluesky
Posts tagged #mcas
Everything I read said LDN is low risk and easy to stop, but akathesia insomnia worsened my already-very-low #ME baseline for many months. I understand all meds and supplements have risks and we don't know how to tell who will react most negatively etc (especially in a population with #MCAS) 3/4
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tomu nejde utect. Clovek musi sakra zodpovedne rozhodovat o kazdem jidle. Vylouceni ze socialnich interakci kvuli #MCAS a #EDS je dalsi vec. Uz pres 10 let musim byt extremne opatrna v jidle a rozhodne nejen v jidle. To neni volba, nebo fnukani, tohle jsou me utrzky kazdodenniho zivota. #delamcomuzu
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Narocny vyber jidla resim denne, prakticky u kazdeho jidla. Tech omezeni je mnoho. Od reakci kvuli #MCAS, pres gastro potize vlivem #EDS, ktere zahrnuji cely zazivaci trakt. Prubeh jidla zaroven vyrazne komplikuji blokady, subluxace a skriple nervy. Musim byt opatrna, protoze pripadne zvraceni
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"After her teen daughter was diagnosed with Hypermobile Ehlers-Danlos Syndrome (EDS), American painter Amy Scoggins decided to use her platform to raise awareness..."
#Artist #Art #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #SelfCare
💕 #Wellness
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Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness
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I use to feel shame as I got sicker and relied more on the internet for finding community.
That is totally gone now.
People who don’t have Long Covid will never understand what going through this is like.
Social media is a lifeline for every part of this disease.
#longcovid #mecfs #pots #mcas
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How about both?
#BlogPost #GutHealth #Nutrition #Diet #Microbiome #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #HappyGutHappyLife 💕 #Wellness
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Specialty areas graphic
What I treat most often...
#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness
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Did you know about these people and their chronic illnesses?
#EDS #MCAS #POTS #ChronicIllness #Representation #HolisticHealth 💕 #Wellness
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Which resonates most for you?
#BlogPost #HealthCoach #EduCoach #Consultations #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness
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Mittwoch was anderes/falsches im Essen. Folge Nierenschmerzen, Muskelschwäche, totaler Horror. Letztes Jahr hielt das ein halbes Jahr an! Passiert immer mal, meist so um Ostern herum oder so. Grauenvoll! Einmal was Falsches gegessen halbes Jahr Horror. Hab nur 1 Niere😭😭😭 #MEcfs vermutlich auch #MCAS
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#LiegendDemo #mecfs #cureME #fightME #demonstration #longcovid #Postcovid #Postvac #PAIS #MCAS #POTS #Dysautonomie #EDS #CCI #SFN #FQAD #disability #Ostern #Danke
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It's worldwide and everyone has their own experience with it.
#Scotland #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth
💕 #Wellness
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A wonderful resource for anyone with #EhlersDanlosSyndrome or any other complex condition.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi 💕 #Wellness
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In Kreis Kleve, we, a group of parents, are connected by the sheer force of our children having #LongCovid. I have never met Rosa, but the window to her #MECFS and #MCAS prison is imprinted in my brain. Taped off. Dark. Burried.
Here is here story (in German) & that of Kathi.
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Guys have #EhlersDanlosSyndrome too, you know.
#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness
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On a whim, I picked up some frozen haskap berries at the Italian Centre the last time we were in the city. Tonight I made a crisp with them and WOW do I feel good. Researching haskaps tells me they have extremely high levels of C3Gs, good vit C and antimicrobial properties.
#mcas #chronicillness
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We all have our specialty areas, too. Here are mine.
#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness
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Nope. Definitely not selfish.
#BlogPost #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth #Acupuncture #TuiNa #SelfCare 💕 #Wellness
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Why not both?
#BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #GutHealth #Mindful #Intuitive 💕 #Wellness
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Friends, I'm consulting the hive mind here, and actively want your feedback. If you have #MCAS and/or #gastroparesis would you be willing to share your symptoms and/or what process led to you getting diagnosed? V
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Will your doc recognize it’s from #Covid? Probably not. But you’ll get care. If you go in w/ #MECFS you’ll be shown the door. There is also so much comorbidity of ME w/ #POTS #MCAS #EDS etc that even if you have one of these & don’t have ME, learning about it could still help you to answers. 2/
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Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.
"The goal of this #blog series is to highlight aspects of #identity that are separate from illness; however, #writing is especially helpful in compensating for the #isolation my illness causes.": buff.ly/q48CzG0
Featuring: hospitalprncss
#ChronicPain #MCAS #ChronicLife #allergies
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How does Chinese medicine treat EDS?
#BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #Strategies
💕 #Wellness
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Does anyone on my feed have any experience with #MCAS? The more I'm reading about histamine in foods & the symptoms of MCAS, the more the pieces fit. But it's overwhelming & no 2 articles seem to say the same thing so I'm beyond confused & more than a little desperate. I don't know where to begin.
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Gonna go back to physical therapy again too I'm glad about that. And another allergist referral for MCAS/MCS stuff.
Don't know if it will help or not. Any of #MCAS friends have any luck with any medicines that have helped?
Thought about trying Zyflo but it's bad for your liver.
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I would like to find other people on here that deal with MCAS in their own lives. I don’t spend very much time talking about it but it would be nice to know other people going through the same thing I am on a physical level.
#MCAS
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