Latest posts tagged with #SickleCell on Bluesky
How does the ASH SCD Away Elective Rotation make an impact? Hear from a past participant!
This one-month immersive rotation offers hands-on #SickleCellDisease training in both inpatient and outpatient care.
Apply now: https://ow.ly/1sri50YCYab
#SickleCell #SCD #HemeSky
Wow. This is amazing…but it comes with a huge price tag:
“Lyfgenia carries a list price of $3.1 million. Casgevy lists for $2.2 million.
These are not insurance co-pays.
They are the sticker prices for a single treatment.”
#SickleCell
#PatientAdvocacy
techfixated.com/sickle-cell-...
If you're the young man I ran into at #Duke Raleigh with #SickleCell who was left waiting without care in the ED lobby for 6 hours - or you know him - could you have him get in touch? I really hope he's ok, and O'd like to speak to him further about what he was put through.
This is GREAT...GREAT...GREAT🌟
Sickle cell disease has just been cured for the FIRST time🥳 Wahoo and thanks to scientists and doctors and all the people who helped make this happen🥰 #sicklecell #thereisgood❤️
Thanks #techfixated.com😊 techfixated.com/sickle-cell...
A historic day for medicine: Sickle cell disease has been cured for the very first time in New York! 🎉 This monumental breakthrough offers immense hope to patients worldwide. #SickleCell #MedicalBreakthrough #GoodNews
📢 Deadline extended: North West Programme Manager
You now have until 29 April 2026 to apply.
Lead our CYP Peer Mentoring Programme and make a real impact for young people living with sickle cell.
🔗 www.sicklecellsociety.org/north-west-p...
#SickleCell #Hiring #ProgrammeManager
so honored and excited tos hare on behalf of all our team and co-investigators the results of RUBY study #EditasMedicine that used novel first-in human CRISPR-Cas12a Gene Editing of HBG1 & HBG2 Promoters to treat #SickleCell Disease which was published today in @nejm.org www.nejm.org/doi/full/10....
We’re recruiting Mentors in North West England for our CYP Peer Mentoring Programme.
📍 Liverpool, Manchester & Sheffield
Make a real difference for young people living with sickle cell.
🔗 www.sicklecellsociety.org/nw-s-yorks-m...
#SickleCell #PeerMentoring #Hiring
We’re looking for healthcare & non-clinical volunteers for our Sickle Cell Family Retreat 2026.
Support families, build community and make a real difference.
📅 Apply by 10 April 2026
🔗 Volunteer Application Form
#SickleCell #VolunteersWanted #MakeADifference
📣 Join our Sickle Cell Engagement Event
📅 16 May 2026 | 🕛 12–3pm
📍 St Thomas’ Hospital or online
Share your experiences and help shape better care.
Register:
In person: buff.ly/BGDZQVz
Virtual: buff.ly/Cith4BM
#SickleCell #PatientVoice #LondonEvents
Only 2 weeks left to visit the Sickle Cell Society Exhibition – Our Journey, Our Story.
📍 Royal London Hospital, Inclusion Hub (Level 14)
🕐 Mon–Fri, 1–4pm
📅 Closes 11 April
Head down and see it before it closes.
#SickleCell #SickleCellSociety #Exhibition
Most kids with chronic illness never see themselves in books.
So I wrote them.
📚 Follow @IAMElleCole
#sicklecell #type1diabetes #representationmatters #chronicillnesskids #patientadvocate #diabetesawareness #sicklecellwarrior #kidshealth
Important update: meningitis advice for people living with sickle cell and thalassaemia.
Know the symptoms and when to seek urgent care.
Read more:
www.sicklecellsociety.org/staying-safe...
#SickleCell #Meningitis #HealthUpdate
I used to put everyone else first—until burnout forced me to choose differently. Setting boundaries changed how I show up for myself and my family.
Hear my story on the Walking With Warriors podcast. 🎧 bit.ly/47bKeuN
#SickleCell #CaregiverBurnout #CaregiverSupport
We’re hiring a Mentor Administrator (North West England) to support our Peer Mentoring Programme.
Help coordinate support for young people living with sickle cell.
🔗 www.sicklecellsociety.org/mentor-admin...
#SickleCell #SickleCellSociety #Hiring
Having sickle cell trait doesn’t mean you can’t be an athlete. For most, it’s safe to play sports & do moderate exercise with routine precautions.
Learn more: https://ow.ly/krgA50Yy55c
#SickleCell #HemeSky #MedSky
Science is proving a cure is possible. The real question is whether health systems are ready to deliver it where it’s needed most.
My latest for Nature Africa:
www.nature.com/articles/d44...
#sicklecell #genetherapy #africa
We’re recruiting a Clinical Director for our CYP Peer Mentoring Programme (London).
Lead clinical oversight and help improve transition outcomes for young people with sickle cell.
📅 Apply by 28 April 2026
🔗 www.sicklecellsociety.org/clinical-dir...
#SickleCell #SickleCellSociety #Hiring
📢 We’re recruiting Trustees.
We’re especially looking for people with lived experience of sickle cell and/or fundraising experience to join our Board. Your insight, perspective and expertise play a vital role.
🔗 buff.ly/PxgwQ1f
#SickleCell #Trustee #Fundraising
We’re hiring a South West London Clinical Lead for our Peer Mentoring Programme.
📅 Apply by 27 April 2026
🔗 www.sicklecellsociety.org/clinical-lea...
#SickleCell #SickleCellSociety #Hiring
Please be true!
#medical #breakthrough #sicklecell #science
94%
94%!!!!!!!!!!!!!!!!!!!!!
#SickleCell
Great news! #SickleCell
Now accepting submissions for the March SCDC Update!
Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can help amplify your work in our next newsletter.
Send your items or questions to coordinator@scdcoalition.org.
#SickleCell #SCD
Sign up to join our transition workshop on wellbeing, healthy lifestyle and staying safe.
This session is for North-East London Sickle Cell patients aged 14+ and will take place at Stratford Library.📲 Scan the QR code or click the link below to register: bit.ly/4s33TVD
#SickleCell #Transition
Join us for the Sickle Cell Society Exhibition – Our Journey, Our Story plus a programme of talks, workshops & community events.
📍 Royal London Hospital (Level 14)
📅 11 Mar–11 Apr
🕐 Mon–Fri, 1–4pm
Come and be part of the conversation.
#SickleCell #SickleCellSociety #Exhibition
Headed to Atlanta for the SCD Unified Action Forum (April 11–12)? This is your sign to lock in your travel.
Book your flight & hotel by March 24 to secure your spot and make the most of the Forum.
Let’s move sickle cell care, research & advocacy forward—together.
#SickleCell #SCD #SCDCPartner
www.hackedexams.com/item/121947/...
NCLEX Hematology Nursing Iii TEST BANK 2025 2026 Master Sickle Cell Anemia More With Verified Qa To Pass On Your First Try
#NCLEXHematology #Hematology #Nursing #TESTBANK #TESTBANK2025 #SickleCell #studyguide #hackedexams
Sending love this Mother’s Day to all the incredible mums in our community. 💐Your strength and resilience inspire us every day.
From all of us at the Sickle Cell Society, we celebrate you. ❤️
#MothersDay #SickleCellMums #SickleCell #SickleCellCommunity
