Latest posts tagged with #cfs on Bluesky
Only you can unlock the door to your best self, but #CFS can help you find the key. No fee, no referral necessary. Are you #ready2talk? Unlock your potential with our #WalkInWednesdays counselling clinic. #HopeLivesHere
Recognizing and assisting students with CFS by Dr. Kenneth Friedman and Rosemary Underhill Photo of a young person Most students with ME/CFS fall behind in their schoolwork due to cognitive problems and fatigue.
"Recognizing & assisting students with CFS" by Drs Kenneth Friedman & Rosemary Underhill
I came across this 3-page 2007 article when doing a clear out. I'm not going to reread it now but as I recall, I thought it was quite good at the time
www.njcfsa.org/wp-content/u...
#MEcfs #PwME #CFS
Are you in #Collingwood and #ready2talk? #CFS is ready to help! With our no-cost-to-you inclusive programming, we're able to help a wide range of great people in the community. Book your session now at https://tinyurl.com/3n8cj88f #HopeLivesHere
Image of lots of envelopes flying away
ME Research UK:
March's ME Research UK e-newsletter has been sent to supporters and is also available on our website - tinyurl.com/3etkznxw
#mecfs #pwme #cfs
#CFS hopes you enjoyed the long spring weekend - extra long for those of us lucky enough to have #EasterMonday off as well! How did you spend your leisure time over the last few days? #HopeLivesHere
Beim Aufräumen fand ich den Film zur Geschichte von #CFS bzw. #ME/CFS wieder. Ich verschenke ihn. Zum Ansehen ist allerdings ein VHS-Recorder notwendig!
Es handelt sich um einen Dokumentarfilm von Kim A. Snyder von 2001, USA, deutsche Voice-over-Fassung.
#CFS
#ME/CFS
#VHS
#Dokumentarfilm
(1/3)
New #cfp added for Cloud Native Days Norway (@cloudnativebergen.dev) in October 2026. More details at cfp.watch/cfps/2026-cl.... #cfs #callforpapers #callforproposals #speakers #callforspeakers #publicspeaking #speakerlife
Three days after Christ's crucifixion, he rose in resurrection. #Easter celebrates this holy act with joyous events and bright colours. To join the community fun, see what's going on around #Barrie at https://tinyurl.com/yhssd5v9 #CFS #HopeLivesHere
10/
“I was in bed. Screens were making my symptoms worse. Staying upright was not possible. The writing I would have done, the posts I would have shared, the community I would have engaged, all of it was behind a wall I could not climb over. (contd)”
#mecfs #longcovid #pwme #cfs
A park stairway up a small hill covered with moss and plants, trees around. Rodini Park, Rhodes, Greece
Wildflowers of white, yellow and indigo. Rodini Park, Rhodes, Greece
A wet book lying in front of a mural of a peacock. Rodini Park, Rhodes, Greece
I had caffeine and made it to the park and back. Due rain for the next couple of days. Nature fix is just what I needed. I know the #cfs fatigue crash is coming tomorrow but my soul feels better. Happy Sunday y'all. #naturewalk #witchywalks #rhodes #greece
2/
“Now I cannot stay upright. The fatigue is a physical weight, not a feeling of sleepiness but something more like gravity has been turned up and my body is the only thing that hasn’t gotten the memo. Screens worsen my symptoms. Sound is exhausting. (contd)”
#mecfs #LongCovid #pwme #cfs #postcovid
All #CFS services are closed today for #GoodFriday, but we'll be back on Tuesday! You can still book your sessions now online at https://cfssc.ca/ #HopeLivesHere
Today is a time of mourning and quiet reflection for Christians across the world as they commemorate the crucifixion and death of Jesus. #CFS wishes a meaningful #GoodFriday to all those who observe. #HopeLivesHere
Facts. Before my diagnosis I tried to boost my health by exercising more, like we're all told to to do. I trained diligently, and a few weeks out from a half-marathon I crashed. It's taken 3 years to be able to walk for 20-30 minutes max. (I'm a "mild" case.)
#mecfs #disability #chronicillness #cfs
#CFS will be closed tomorrow and Monday for #GoodFriday and #EasterMonday. We wish you all a happy holiday weekend! We'll be back in action Tuesday. #HopeLivesHere
Table 6. Duration of PEM, illness course, and functioning (N = 1534). Items %(n) Length of prolonged, unpredictable recovery period 95.2 (1460) Within 24 h Between 1 and 2 days Between 3 and 6 days Between 1 week and 1 month Between 1 and 6 months Between 6 months and 1 year Between 1 and 2 years Over 2 years Crash that has never resolved 14.1 (216) 38.9 (596) 58.0 (890) 46.7 (717) 30.3 (465) 13.6 (209) 9.8 (151) 12.3 (189) 67.1 (1029)
In an international survey (n=1534) www.mdpi.com/2075-4418/9/..., 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise).
Patients & professionals should be informed of this risk.
Exertion has ruined some people's health
#MEcfs #CFS #PwME #PEM
It's never been easier to get help with Men's Counselling Link! All it takes is a couple clicks and you're booked. Visit https://tinyurl.com/4v4amez5 to book your session today. #CFS #HopeLivesHere
Abra abracadabra
I wanna reach out and grab ya... #smokeandmirrors
Walking thru the #brainfog is like going thru a Fun House mirror minus the fun bit
🌫️🪞🌫️🥄
#fatiguechronique #CFS #spooniecommunity #spoonie #webcomics #chronicfatigue
Navigating mental health care can seem counter-productive. Let a #CFS counsellor help you connect the dots to a better life through our Men's Counselling Link program. No referrals or fees required. Book your in-person or virtual session now at https://tinyurl.com/yzpb6vz6 #CFS #HopeLivesHere
New #cfp added for DevFest Paris in November 2026. More details at cfp.watch/cfps/2026-de.... #cfs #callforpapers #callforproposals #speakers #callforspeakers #publicspeaking #speakerlife
Did you know that the origins of #AprilFools day is unknown? It resembles some other traditions around the world, but no one can say for sure where it came from—and that's no joke! #CFS #HopeLivesHere
We'll be closed Friday & Monday for #GoodFriday & #EasterMonday but don't worry! We'll be back in full swing on Tuesday. #CFS #HopeLivesHere
Each year since its establishment in 1998, #PoetryMonth has celebrated the written word. Learn more about its impact on #Canada's culture at https://tinyurl.com/3dzmhh47 #CFS #HopeLivesHere
Myalgic Encephalomyelitis Complex, acquired, multi-systemic disease MAY ICC ME AWARENESS MONTH photo of 2 dolls named Jim and Rosie As a parent of a child with M.E/CFS, I live under constant fear of the wrong person getting involved in our lives. What an awful situation it is that you have to be wary not to push too hard for help or not complain because there's a risk they could take your child
One month to go
A great opportunity to raise awareness and understanding. Also the month (and the associated awareness day/week) can be used for lobbying, fundraising, and other forms of activism.
#PwME #MyalgicEncephalomyelitis #MEcfs #CFS
What's that sound? It's the whoosh of #CFS' doors opening for our weekly #WalkInWednesdays counselling clinic! Are you #ready2talk? Come on in! #HopeLivesHere
Do you have a mental health concern and are #ready2talk? With #CFS it's easier than ever to access high-quality, no-cost counselling. Just visit https://tinyurl.com/3n8cj88f and click "book now." #HopeLivesHere
Men's Counselling Link services are offered both virtually and in person in #Simcoe #Muskoka - no referral or fees required! A session with a professional counsellor from #CFS may be booked at https://tinyurl.com/yzpb6vz6 #CFS #HopeLivesHere
"Our study joins a growing body of work by scholars and patient advocates calling for recognition, respect, and reinvestment in the lives of those with severe ME/CFS These individuals are not invisible by choice; they are rendered invisible by systems that refuse to acknowledge their existence and suffering. Listening to their voices is a moral imperative, a research necessity, and a first step toward justice." RESEARCH UK INFORM. INFLUENCE. INVEST. SCO36942 Nezamdoust and Ruel. Social Science & Medicine (2026)
ME Research UK:
A team of researchers have published a study investigating lived experiences of people with ME/CFS using data from posts made on social media.
Read more: tinyurl.com/mj2p8c24
#mecfs #cfs #pwme #severeme #severemecfs
![Could identifying the viral trigger of ME/CFS inform future therapeutics? A recent study analysed immune cells from 10 individuals with long COVID (LC)-ME/CFS (meeting Canadian Consensus Criteria) and 10 controls (recovered from infection) Findings were compared with existing datasets from idiopathic ME/CFS patients.
Whilst there were similarities, LC-ME/CFS showed both extensive immune cell depletion AND hyperactivation, whereas idiopathic ME/CFS showed immune cell activation without the same level of immune cell loss.
Signs of T cell exhaustion (T cells overworked to point of malfunction) present in LC, not in idiopathic ME/CFS.
As this is a snapshot, it cannot rule out that idiopathic ME/CFS might start out with similar immune changes. Though, these results suggest that understanding viral triggers like SARS-CoV-2 could guide future therapeutics.
Note: authors do not define idiopathic ME/CFS Shahbaz, S. et al (2026). Single-cell analysis reveals immune remodeling of monocytes, NK cells, T cell exhaustion, and Galectin-9—associated depletion of gamma delta and mucosal-associated invariant T cells in Long COVID with ME/CFS. Frontiers in Immunology, [online]. INFORM. INFLUENCE. INVEST.
Ihea RESEARCH UK SCO36942](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreigmsxo45n7xszgumubqtd2fhxmo4o4p22hrx6urgkhefyetsdfsq4)
Could identifying the viral trigger of ME/CFS inform future therapeutics? A recent study analysed immune cells from 10 individuals with long COVID (LC)-ME/CFS (meeting Canadian Consensus Criteria) and 10 controls (recovered from infection) Findings were compared with existing datasets from idiopathic ME/CFS patients. Whilst there were similarities, LC-ME/CFS showed both extensive immune cell depletion AND hyperactivation, whereas idiopathic ME/CFS showed immune cell activation without the same level of immune cell loss. Signs of T cell exhaustion (T cells overworked to point of malfunction) present in LC, not in idiopathic ME/CFS. As this is a snapshot, it cannot rule out that idiopathic ME/CFS might start out with similar immune changes. Though, these results suggest that understanding viral triggers like SARS-CoV-2 could guide future therapeutics. Note: authors do not define idiopathic ME/CFS Shahbaz, S. et al (2026). Single-cell analysis reveals immune remodeling of monocytes, NK cells, T cell exhaustion, and Galectin-9—associated depletion of gamma delta and mucosal-associated invariant T cells in Long COVID with ME/CFS. Frontiers in Immunology, [online]. INFORM. INFLUENCE. INVEST. Ihea RESEARCH UK SCO36942
ME Research UK:
A recent study found differences in the extent of immune changes in ME/CFS following SARS-CoV-2 infection vs. idiopathic ME/CFS. Do different viral triggers produce variations in underlying pathophysiology?
Read more: tinyurl.com/543kcekm
#mecfs #pwme #cfs
1/
