#lupus

The Journal of Rheumatology

16 hours ago

Community Health Workers play a vital role in connecting people to care. 💜 LFA’s CHW Lupus Education & Resource Hub offers on-demand training to increase #lupus awareness, recognize signs & symptoms, & connect communities to resources.

Learn more: buff.ly/c8X1htY

1 0 0 0

@jrheumatol.bsky.social

17 hours ago

📘 The April issue is now available.

Explore new peer-reviewed research and clinical insights in the latest issue of @jrheumatol.bsky.social.

🔗 www.jrheum.org/content/53/4...

#RheumatoidArthritis #Spondyloarthritis #PsoriaticArthritis #Lupus #Vasculitis #Osteoarthritis #InterstitialLungDisease

0 0 0 0

Stickman Communications

@stickmancomms.bsky.social

19 hours ago

Activity decision chart pacing poster | Stickman Comms This “Activity Decision Chart” pacing poster is a full colour A4 simple guide to the process of deciding whether an activity is doable or not. It is a light hearted and effective tool for anyone with…

of the decision making process (like talking through the process on this poster) can really help them gain a better understanding of what you deal with and what you need.

#Hypermobility #EDS #Fibro #ME #Lupus #Pacing #Arthritis

www.stickmancommunications.co.uk/product-page...

5 0 1 0

@brunellalongo.bsky.social

1 day ago

After his sister was diagnosed with #lupus, Andrew found his way to make a difference — one mile at a time. The LFA is building our inaugural team for the 2026 Philadelphia Marathon Weekend! 5 spots per distance.

Join us and apply by April 13th: buff.ly/LVO9aVt

1 0 0 0

Brunella Longo

1 day ago

Well well... that must be for the astronauts.

Meanwhile for over 60 mortals on Earth with autoimmune diseases like #sjogrens or #lupus susceptible to yeasts infections on skin, nails, mucosa (blisters, abscesses, even sepsis) NHS GPs can now withdraw antifungals from their repeated prescriptions

1 0 1 0

2 days ago

Can't make it to the National #LupusAdvocacy Summit in-person? Virtual Advocacy Day is just 2 weeks away — and you can still raise your voice for #lupus research, education, and care from anywhere.

Sign up as a Lupus Foundation of America advocate today: buff.ly/xG5U3xB

2 0 0 0

2 days ago

Formarse es clave 🔑💜 FELUPUS organiza talleres y actividades que ayudan a pacientes a gestionar mejor su día a día 🤝📚 #Lupus #Formación #FELUPUS #CalidadDeVida

0 0 0 0

Gut microbe R. gnavus could be key to lupus, lupus nephritis pathogenesis A bacteria found in the gut may “very important” to the development of lupus and lupus nephritis, according to a speaker at the Basic and Clinical Immunology for the Busy Clinician symposium.“We have…

2 days ago

bsky.app/profile/mari...
I´d been tired of the questions about eventual chemo therapy or cancer, tired of explaining that I have #Lupus, so I wore that baseball cap outside for months, but my hair grew back on its own at the end.
@clevelandclinic.bsky.social

1 1 0 0

A Chronic Voice

@achronicvoice.com

2 days ago

My Recovery Time for Simultaneous Bilateral Patellar Tendon Rupture — What happens when you have Lupus, and are on long-term steroid therapy.

"To me, it was just part of a regular #Lupus or #Sjogrens #PainFlare. That is a huge problem with chronic, #autoimmune disorders..You often get so used to living with pain that you sometimes don’t notice when a pain is ‘not normal’ anymore.": buff.ly/Tpp5EEN

#ChronicPain #MondayBlogs #disability

13 5 1 0

Jerdie💙

@jerdie.bsky.social

3 days ago

I haven't been diagnosed with any type of myositis, but my back muscles sure feel like they're myositis-ing lately, with swelling and everything.
#lupus

1 0 0 0

A Chronic Voice

@achronicvoice.com

3 days ago

"Rheuminococcus gnavus #bacteria may be associated with #lupus and #LupusNephritis. Treating R. gnavus could limit the need for #biologic or DMARD therapy in some patients with lupus.": buff.ly/3i05kAX

via @gohealio.bsky.social
#MedicalResearch #GutMicrobe #autoimmune #ChronicIllness

5 1 1 0

@gelliottservices.bsky.social

3 days ago

bsky.app/profile/mari...
None of these, I´d had a too high blood pressure for a whole week lately, but monitored it for about 2 weeks in the mornings and evenings, noted the values, it´s normal/low again. Maybe I´d had a #Lupus flare.
@lupusuk.bsky.social @lupus.org

1 1 0 0

3 days ago

#easter #weekend 💛 London Life #outdoor #spring 🌸 #active www.gelliottservices.com Lupusfit™️ #freelance spring cleaning #mind #body & garden #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

5 0 0 0

Journal of Human Immunity

3 days ago

🧠 Ever have trouble finding the right word, remembering details or concentrating? Up to 80% of people living with #lupus experience brain fog at some point.

💜 Learn more about lupus brain fog, what causes it, and ways to manage it:
buff.ly/XDyUFT3

4 1 0 0

@jhumimmunity.org

4 days ago

Familial lupus associated with a P2RY8 variant: navigating the boundary between monogenic disease and genetic susceptibility to #lupus. New report from Clémence David, Marie-Louise Frémond @institutimagine.bsky.social and colleagues: rupress.org/jhi/article/...

@esidsociety.bsky.social

2 2 0 0

4 days ago

💜 For the #lupus community, stress management may directly impact flare frequency and severity. Small changes to how you manage stress can go a long way.

Learn tips for managing stress with lupus: buff.ly/fFv3icz

Reshare this post to help raise awareness!

5 2 0 0

5 days ago

El lupus es una enfermedad invisible para muchos 👀💜 Por eso FELUPUS trabaja para sensibilizar y generar conciencia social 🌍✨ #Lupus #Visibilidad #Conciencia #Salud

0 0 0 0

5 days ago

Missed our latest #Lupus & You webinar on kidney health? 💜 Our new blog recap covers everything from recognizing early warning signs and monitoring to treatment options, lifestyle habits, and advocating for your care with confidence.

Read more: buff.ly/KmKykMj

1 0 0 0

6 days ago

💜 This #StressAwarenessMonth, we're thinking about the #lupus community.

For people with lupus, stress can trigger flares and worsen symptoms. The good news? There are steps you can take to manage it.

Check out our stress management tips: buff.ly/fFv3icz

5 1 1 0

Spring Into Action: 35 Challenge Spring into Action this April & May! Walk, run, cycle, wheel, swim, or donate £35 - your way, at your pace. Every Mile and £1 donated helps us raise vital funds to support those living with this ofte...

6 days ago

Also for UK #Lupus patients, or for those who can donate, I´m German and on #SocialSecurity, so #SharingIsCaring.
💖💖💖
Spring into Action this April & May!
www.justgiving.com/campaign/spr...
@lupusuk.bsky.social

1 1 0 0

6 days ago

For #Lupus patients in the UK, for me as German longtime #SLE patient since 1992 #SharingIsCaring.
💖💖💖
lupusuk.us3.list-manage.com/track/click?...
@lupusuk.bsky.social

1 1 0 0

@gelliottservices.bsky.social

6 days ago

El apoyo emocional también cura 💜 FELUPUS fomenta espacios seguros donde compartir experiencias y sentirse comprendido/a 🤗✨ #Lupus #SaludMental #ApoyoMutuo #FELUPUS

0 0 0 0

6 days ago

#firstdayofthemonth ☝🏾London #indoor #outdoor + Hospital: Lupus💜Life. #spring #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

3 0 0 0

🇨 🇭 🇪 🇷 🇾 🇱 🇺🇸 🇨🇦 🇺🇦 🩵 💙 🌊

6 days ago

🎮 1 month away — #GOTEL is almost here!

Whether you stream video games, make music, craft, or create art — you can be part of the fight against #lupus. Join hundreds of creators worldwide May 1–3 or keep the momentum going all May long.

Sign up today: buff.ly/XXfvXfs

5 2 0 0

@confettimother.bsky.social

6 days ago

Poster for April 1st with a colorful umbrella and text listing various holidays and observances, including "April Fools' Day," "National Sourdough Bread Day," and "National Trombone Players Day," set against a whimsical rainy blue background with a cloud border.

𝗔𝗽𝗿𝗶𝗹 𝟭

• #April Fools' Day
• #Boomer Bonus Day
• Fossil Fools Day
• International #Fun at Work Day
• #Lupus Alert Day
• National Love for our #Children 👶🏻 Day
• National Sourdough #Bread 🍞 Day
• National Trombone Players Day
• US #AirForce Academy Day

#Today

6 0 1 0

1 week ago

Doctor visits. Medications. Insurance battles. The financial weight of #lupus is real. This #FinancialLiteracyMonth, remember our Health Education Specialists are here to help connecting you with non-medical resources for free.

Reach out today: buff.ly/u8Covx0

5 0 0 0