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Posts tagged #millionsmissing

Teal text reading “Bundle 3” above photos of the prizes listed in the caption

Bundle 3:
Drawn poorly zine
Collage commission & 3 prints (either monochrome or collage) from Burn your bones
Libro.fm token from Fran
Leftbians necklace of choice

Teal text reading “Bundle 3” above photos of the prizes listed in the caption Bundle 3: Drawn poorly zine Collage commission & 3 prints (either monochrome or collage) from Burn your bones Libro.fm token from Fran Leftbians necklace of choice

White text on a pink background reading “About Nevra: Nevra’s a community organiser with Severe M.E. in Karachi, Pakistan, & a major advocate for people with M.E., particularly in the Global South. Her health is becoming more & more critical, & she’s been experiencing paralysis, anaphylaxis, & multiple skin infections among many other symptoms. She desperately needs your support to prevent her having to return to a DV situation. All funds raised will go towards safe housing, carers, & treatment for our dear friend.”

White text on a pink background reading “About Nevra: Nevra’s a community organiser with Severe M.E. in Karachi, Pakistan, & a major advocate for people with M.E., particularly in the Global South. Her health is becoming more & more critical, & she’s been experiencing paralysis, anaphylaxis, & multiple skin infections among many other symptoms. She desperately needs your support to prevent her having to return to a DV situation. All funds raised will go towards safe housing, carers, & treatment for our dear friend.”

All funds raised will go towards safe housing, treatments, & carers for our dear friend 💜

#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid

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Right back at you. From another stranded at home with chronic illness. #MillionsMissing

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#MEAction - "Frail and Furious" Millions Missing 2026
#MEAction has posted information about their Millions Missing campaign for May 2026. Their toolkit (Google doc) includes information about online actions as well as in-person Millions Missing events in the USA (Washington, DC) and UK (location TBD). Two storytelling workshops are scheduled in April to help people with ME/CFS and Long Covid share their personal stories.
Announcement | Video | Thread

#MEAction - "Frail and Furious" Millions Missing 2026 #MEAction has posted information about their Millions Missing campaign for May 2026. Their toolkit (Google doc) includes information about online actions as well as in-person Millions Missing events in the USA (Washington, DC) and UK (location TBD). Two storytelling workshops are scheduled in April to help people with ME/CFS and Long Covid share their personal stories. Announcement | Video | Thread

MEAction - "Frail and Furious" Millions Missing 2026

docs.google.com/document/d/1...

www.meaction.net/millionsmiss...

www.youtube.com/watch?v=T3am...

Screenshot from latest Science for ME weekly update

#millionsmissing #MEcfs #PwME #ME #MyalgicE @meactnet.bsky.social @meactionuk.bsky.social

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Welcome! You are invited to join a meeting: Personal Narrative Workshop. After registering, you will receive a confirmation email about joining the meeting. If you would like support and guidance on crafting your story using these prompts, please join us for one of two writing workshops, hosted by Shalida Dobbins and our narrative volunteer group.

@meactnet.bsky.social Free Workshops: Register for either #MillionsMissing storytelling workshops led by Shalida Dobbins 4pm ET on: 4/14 ow.ly/49nK50YCSEf or 4/16 ow.ly/6mXj50YCSEi, to get guidance, prompts, & community support to help craft your story about living with ME/CFS.

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Red t-shirts featuring 'Frail & Furious #MillionsMissing' on the front and '#MEAction logo on the back. Text: Tees now available! Available for immediate shipping! With or without logo on the back. Multiple colors, styles, and sizes! Order now.

Red t-shirts featuring 'Frail & Furious #MillionsMissing' on the front and '#MEAction logo on the back. Text: Tees now available! Available for immediate shipping! With or without logo on the back. Multiple colors, styles, and sizes! Order now.

#MillionsMissing 2026 #FrailAndFurious tees are now available! https://www.bonfire.com/store/meaction-1/

We have lots of styles and colors to choose from!

You can choose tees with a logo on the back on ones without.

A portion of your purchase helps support our work!

#pwME #MECFS #LongCovid

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A blue and white ribbon featured with a crochet hook and blue and white yarn.

A blue and white ribbon featured with a crochet hook and blue and white yarn.

ME/CFS San Diego Millions Missing
May Crochet Project!

Help raise awareness for ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by creating visible shows of ME/CFS solidarity!

Details here: www.mecfssandiego.com/May2026Crochet

#Crochet #MECFS #MillionsMissing

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Tulpenstrauß mit Osterhase und Osterei

Tulpenstrauß mit Osterhase und Osterei

Frohe Ostern 🐣
Für viele mit #MECFS #LongCovid #PostVac #PAIS ist ein gemeinsames Osterfest keine Selbstverständlichkeit.
Umso mehr wünsche ich allen #pwME ein symptomarmes, erträgliches Fest mit etwas Teilhabe 💛

#millionsmissing #learnaboutme #chronicalillness

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I'd also like to talk abt the fact roughly 300 are STILL DYING OF COVID EACH WEEK IN THE USA, which is likely an undercount

& scores more who suffer lasting impairment, disability, & loss of work, home, quality of life due to long covid

Millions missing

#MillionsMissing
#LongCovid
#CovidIsNotOver

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2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!

Register now for either of our #MillionsMissing Storytelling workshops coming up on April 14th and 16th at 4 pm ET. For anyone wanting some guidance and help crafting your story!

April 14 https://ow.ly/AX0650YCSEj
April 16 https://ow.ly/uy7250YCSEh

#FrailAndFurious

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Donations for Nevra's hospital bills, rent, and mold remediation have stalled. Please consider donating, liking, commenting, and sharing

paypal.me/SaveLizNevra

gofundme.com/f/save-nevra

#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid

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The tens of millions of us w/ #MyalgicEncephalomyelitis & now the tens of millions more w/ #LongCovid can't launch an ACT UP-style protest--& I wish we could--b/c most of us are far too ill to get there.

So here's what you need to know about this year's #MillionsMissing theme, Frail and Furious:

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 New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person.   MEAction logo is a circle with the text #MEAction in the circle.

New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person. MEAction logo is a circle with the text #MEAction in the circle.

This #MillionsMissing, we are #FrailAndFurious!

Injustices are happening worldwide because ME is not taken with the seriousness we deserve.

Let's come together to show the world how devastating this disease is.

Join the fight: millionsmissing.org

#pwME #LongCovid #MECFS

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#MillionsMissing 2026 time! www.meaction.net/millionsmiss...

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#MillionsMissing 2026 #MEAction Executive Director Laurie Jones Shares Why We Are Frail & Furious.
#MillionsMissing 2026 #MEAction Executive Director Laurie Jones Shares Why We Are Frail & Furious. YouTube video by The ME Action Network

This #MillionsMissing, we are FRAIL and FURIOUS! Injustices are happening to people with ME & Long COVID around the world. Myalgic encephalomyelitis (ME) is not taken with the seriousness we deserve.

More info: www.meaction.net/millionsmiss...

Video introduction: youtube.com/shorts/T3amp...

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www.bbc.co.uk/news/article...

The more articles like this appear, the more we will be accepted as individuals who have a debilitating illness.

We need help, and we need society to help us.

The more publicity, the better.

#ME #CFS #millionsmissing

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Palm cross leaning against a picture in a frame. The picture is typography and it says, "Punk priest".

Palm cross leaning against a picture in a frame. The picture is typography and it says, "Punk priest".

On God alone my soul in stillness waits.

This Palm Sunday, remembering the #MillionsMissing - those who have ME/CFS

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Thank you for remembering us. #MillionsMissing #disability

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If you haven’t already, please add your name to this letter to state medical boards urging them to address the education gap on MECFS and to add knowledge of this debilitating condition to licensing requirements.
#MECFS #MillionsMissing

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Please learn about the #MillionsMissing and their extreme need for caregiving support, sometimes accessed through Medicaid, which is currently at risk

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Wir finden: Das Warten muss ein Ende haben. Setze mit uns ein wichtiges Zeichen für ME/CFS und unterstütze uns bei unserer Aktion am 09.05.2026 um 14:00-16:00 Uhr am Platz der Menschenrechte in Wien!

#unversorgtseit1969 #MECFS #MillionsMissing

2/2

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Six years ago, last night.

#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask

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Wir freuen uns auch, wenn ihr uns am 09.05. 14:00-16:00 Uhr am Platz der Menschenrechte in Wien
besucht!

#unversorgtseit1969 #MECFS #MillionsMissing

3/3

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.. als Oma vor ein paar Wochen schrieb (in den extrem seltenen Nachrichten) “und liegt Schnee?” Und Kind dann mich fragte und um ein Foto vom Garten vorm Zimmer bat. #ME/CFS #MillionsMissing

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Pacing and management guides from #meactnet.bsky.social

#mecfs #chronicillness #disability #MillionsMissing #healthcare

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Måske I kunne lave en lille afdeling for ME-børn. Det er så hjerteskærende at Sundhedsstyrelsen ikke vil se dem.
#millionsmissing

“Missing from … my childhood”

www.shutterstock.com/editorial/im...

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Postet euer Video gern zusätzlich am 12. Mai auf euren eigenen Social-Media-Kanälen. Benutzt die Hashtags #unversorgtseit1969 #MillionsMissing und taggt uns, damit wir es teilen können. Danke 💛

💙 Euer ÖG ME/CFS-Team

#ME/CFS #unversorgtseit1969 #MillionsMissing

4/4

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#CovidIsNotOver #CountLongCovid #MECFS #MillionsMissing

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Achtzehn Millionen (!) Menschen - allein in den USA - leiden an den Folgen einer Corona-Infektion.

#CovidIsNotOver #LongCovid
#MillionsMissing

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Long COVID by the numbers:

400 million people affected worldwide
200+ documented symptoms
10–26% of COVID survivors develop it
0 FDA-approved treatments
6 years and counting

Read that last one again.

#LongCOVID #LongCOVIDAwareness #MillionsMissing

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700–1000 Personen demonstrieren vor dem Parlament in #Wien anlässlich des Long-Covid-Awareness-Tags mit MUT für ein besseres Gesundheitssystem, Versorgung und Anerkennung für alle Betroffenen von #Long Covid, #MECFS oder anderen #PAIS.
#mecfs #longcovid #postcovid #millionsmissing

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